Posted 3/31/2008 1:37 PM (GMT -7)
Glad to hear that helped. It is normal to have bad mornings....at least for me. I never plan anything before 10 (except work), and I usually always feel fine by early afternoon. The enemas should help quite a bit. Best of luck.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female

Posted 3/31/2008 3:43 PM (GMT -7)
Quincy - thanks for your post.  I'm currently on 20mg of Prednisone daily (10mg 2x daily).  I'm also doing 4 Lialda and of course the Rowasa.  (I started out at 40mg about 3 weeks ago).
 
I totally agree w/ previous poster as well - I've learned so much more from these boards than from my doc!  To be honest, had I found this board before, I probably would've turned down the Prednisone and tried some alternate methods first.  I'm currently playing around w/ my diet to see what happens.  I've seen a lot of info on the SC diet - but I don't know how realistic that is for me.  As a someone who has worked in the fitness industry, it goes against everything I believe!  sad But I know these are different circumstances. 
 
Anyone had luck w/ the SC diet, or something similar? 
Posted 3/31/2008 6:03 PM (GMT -7)

Hi FitMom,

You sound very similar to me. I am also a mom who is into fitness and nutrition. Last year around this time, I ran a marathon. Sadly, this year, a UC flare has kept me from working out as much as I used to. I am currently taking 30 mg of prednisone and 4 Lialda a day. I am symptom-free at the moment. Since you live a healthy lifestyle, I recommend you check out the Specific Carbohydrate Diet (SCD). The book on which the diet is based is "Breaking the Vicious Cycle" by Elaine Gottschall. Look it up on Amazon and read the testimonials by other people with IBD. They are amazing. I have been on the diet 2 months and I am a believer. The diet does take some sacrifice, but it's well worth it. I hope this helps.

EllieKate

Posted 3/31/2008 10:29 PM (GMT -7)
Hi fitmom00....I think that watching your diet regarding foods that can cause active peristalsis or gas or whatever subjectively will give you more comfort.

Tapering pred....you'll have symptoms anyway.

The SCD and other diets are definitely a challenge regarding commitment. Food to me won't cause flares or treat them...so, I'm not a believer. I have a friend who's on it...she still bleeds, but doesn't have a lot of discomfort...so I think that's what it will help with immensely.

Regarding tapering to 10....you could do 20, 10, 20, 10, 20, 10, 10, 10...for however long it's supposed to be...do the same when going to 5.
or, do you go from 20 to 15? whatever, the staggered tapering makes a lot of sense to me...but as I mentioned..never been on pred.

Regarding exercise....don't overdo because your body can react to that as well...


Heal well!
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 4/1/2008 6:02 AM (GMT -7)
EllieKate, I have been looking in the SC Diet and am amazed at all of the testimonials. It's just so restrictive, and what's more, it restricts so many "healthy" foods (fruit, grains, veggies) which is really all we eat! I am going to look into it though and certainly if I can't get this under control soon, will give it a shot. I'd much rather treat naturally if possible. Have you gained weight on the Pred? I've been super-fanatical about my diet & trying to workout when able, so I've only gained maybe a pound, but my face is HUGE! Not to mention the psychological symptoms. Now that I'm down to 20mg, the hunger isn't so strong.

Quincy, my doc told me to taper 5mg a week ... no other instructions. I think I'll try the staggered tapering though - that seems to make sense to me as well. I don't imagine it would hurt.

I kept the Rowasa in all night again - yeah! Had 2 semi-normal BM's this morning with some blood, but nothing like it has been. Had a LOT Of cramping though. I was feeling so good I actually drove the kids to school this morning instead of my husband (I haven't been able to do that in 6 weeks) ... and planned to go to the grocery store too, but ended up having to rush home. Oh well - I still feel like I'm on the road to recovery! I love this forum!!!!!!!!!!!!

Renee
Diagnosed UC 38cm in August 2007
Currently in a flare since Feb 08.
4 Lialda, 20mg Prednisone (tapering), Rowasa nightly
Posted 4/1/2008 7:31 AM (GMT -7)
Hi FitMom,
 
Yes, the SC Diet is restrictive, but it doesn't really restrict vegetables and fruit (definitely it forbids grains of any kind). In the beginning of a flare, people are advised not to eat raw vegetables and fruit, but they can eat cooked fruit and vegetables. In any case, when I started the diet, I ate as much cooked (and some raw) vegetables as I wanted and one bowl of fruit per day. I also modified the diet to suit me. For example, I don't eat any of the dairy products allowed on the diet, including the homemade yogurt (I take probiotics instead). Look at this website if you're interested: www.scdiet.org. In regard to weight gain, lucky you! I have gained 10 lbs. +, but I had at least 5 lbs. to gain because I had gotten so skinny pre-prednisone. I tapered down to 20 mg. of prednisone today so, hopefully, my hunger won't be as strong as you reported. The psychological symptoms are the worst, but if prednisone will get me out of this flare, I'll suffer through it.
 
EllieKate
Posted 4/1/2008 7:52 AM (GMT -7)
Renee, thats great!!!  The more you can keep it in...obviously the better off you'll be.
 
Im another one who really cant handle restrictive diets.  I do eat well, and I work out regularly, but my colitis has always been tied to my stress levels.  When my mental health is good, I can eat anything and everthing.  Coffee is a very important part of my morning on most days! :-) I also enjoy yogurt and have been living on pinkberry yogurt lately.  Mmm.
 
Hope the Rowasa does the trick for you.  I took it for a few years at one point, but I had a large issue with hair loss eventually, and switched to Asacol (which didnt work at all).
 
Michele

Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!

Posted 4/1/2008 12:03 PM (GMT -7)
Renée...Woohoo regarding the Rowasa....and your morning routine. Sounds as though you're doing much better...keep us posted.
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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