Doc talking about Remicade....

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Numb78
Regular Member


Date Joined Sep 2007
Total Posts : 63
   Posted 3/30/2008 12:06 PM (GMT -6)   
Alright I am completely confused and in need of some advice. I've been dealing with a flare since summer of 07. I've been on a few rounds of pred, salofalk enemas, cortifoam, cortenema and have been on 100mg of Imuran since mid Jan 08.

Although my number of BM's has come down from +10 to about 3-5 per day I am still not in what I would call remission. Currently my symptoms are as I stated 3-5 BM's per day all formed with no D. Some blood and mucus towards the end of the day and lots of gas in the evening.

My doc is now suggesting that I try Remicade as I can't seem to get any better with the drugs I've tried.

My big question is should I go for the Remi or should I hold out a little longer and see if the imuran or cortenemas start to do something? I've been off work for quite some time and now with 3-5 BM's per day I am going back to work but I am pretty nervous about it. When I was in remission before I had absolutely no symptoms and I desperately want to get back there. I was all gun-ho for the Remi until I read that 10 deadliest drugs post and now I'm a little bit scared of it. I also don't completely understand how you come off the Remicade or is it a life long commitment.

Do some people have some symptoms all the time and this is just something I have to get used to or is it possible to get a complete symptom free remission again?

So if you were me would you just carry on with the 3-5 BM's per day or would you go for the Remicade? I'm also down about 30 pounds and I with my current symptoms I just can't gain any weight.
29 year old male, diagnosed after bad flare in Summer 2005, quickly brought into remission by pred and salofalk. 2 years symptom free after that!!
Currently in a flare since summer 07 - I desperately miss remission!!!

Current Meds: finally off Pred (after months of 40mg), 2000mg salofalk, calcium supplements, Pantoloc, Buscopan, Clonazopam, Cortenema
Started 100mg Imuran Jan 15/08 - no noticeable effect yet... aside from nausea, vomiting, fatigue...


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 3/30/2008 2:03 PM (GMT -6)   
don't let that post scare you off a drug- I thought it a really interesting piece of info, that's all. Talk it over with your GI, explain your concerns, & go from there- I know some people are on it for over 2 years- I think that's the longest I've heard of- it either stops working so they go to surgery, or so far, so good! I think eventually your doctor would want you to try & taper off the Remicade also- talk, talk, talk with them! Just look at all the pros & cons & make a decision based on that.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/30/2008 2:59 PM (GMT -6)   
Numb, there are people with rheumatoid arthritis who have been on Remicade for as long as eight years without problem. There are also people for whom it doesn't work or who have a reaction right away. Then there is a small percentage (now since they found out about the TB thing) who develop serious problems.

All drugs, whether natural or pharmaceutical, come with their own set of risks and benefits. Any time we take a medication, it's a process of weighing the risks against the potential benefits. Each person has to do that for herself based on her own priorities and life responsibilities. As Eva said, do your research, talk to your doctor, then decide what's best for you.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, May 23, 2018 7:07 AM (GMT -6)
There are a total of 2,965,237 posts in 325,225 threads.
View Active Threads


Who's Online
This forum has 162945 registered members. Please welcome our newest member, Deb358.
317 Guest(s), 8 Registered Member(s) are currently online.  Details
Not Around, Through, JudyLinx'd, sandyfeet, GuitarGERD, Mark FW, sierraDon, SharonZ, Crazyick