Saw my GI today... Remi vs Humira

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soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 3/31/2008 10:43 AM (GMT -6)   
So, I was in the hospital in February with a terrible flare.  Had a checkup this morning with my GI.  While I am MUCH better than when I was in the hospital - I still am a long way from being in remission.  He said we could do several things - shorten the time between Remicade infusions, double the Remicade amount or even start another "loading" dose of the Remicade.  3 doses 2 weeks apart and then every 8 weeks.  OR, I can try Humira.  Since the Remicade is taking longer to start working and losing its effectiveness early, he thinks it may stop working for me.  I have been on Remicade for a year and a half.  Anyway, I am a little reluctant to switch to the Humira - I do like having ONE more medicine out there that I can try. 
 
So, the Dr. told me that he didn't want me to switch just yet - call him in a couple weeks if I am worse and we will increase the Remicade.  He said that he is trying to "buy" some time with me - that usually people my age (in my 30's) start to settle down with the flare ups some.  Have any of you ever heard of this???  I sure hope it's true - I have had a rough time the past couple of years.

Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


UC Wife in MD
Regular Member


Date Joined Aug 2007
Total Posts : 63
   Posted 3/31/2008 11:09 AM (GMT -6)   
My Husband was on Remicade every 4 weeks because 8 weeks was to long to wait for him.  Maybe every 4-6 weeks will do the trick for you.

princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 3/31/2008 11:39 AM (GMT -6)   
This is just coming from my experience, I would rather start taking the dose every 6 weeks instead of raising the dose. I wouldn't rush to try Humira because like you said, then that makes one less med you can take. I had to wait a while for my insurance to approve any changes with the doseage/timing of Remicade, so keep that in mind. Plus, my insurance will not cover Humira because it's not approved for UC.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica started 1/17/08


soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 3/31/2008 11:41 AM (GMT -6)   
I know, my first change will be to shorten the intervals.  That seems the easiest to try first.

Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/31/2008 11:45 AM (GMT -6)   
Just a question for you. I'm on Remicade too. So far I have just had two doses. I don't know the answer to your question because after a 2 week hospitalization just this month I was diagnosed with pancolitis.

But my question for you is what are you eating on Remicade? I'm trying to eat only bland soft foods to prevent a flare, but to tell you the truth now I'm constipated!! Can food be "making" the Remicade not work?? I'm also on 25 mg of prednisone on a taper schedule.

What do you think?

soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 3/31/2008 11:51 AM (GMT -6)   
I have not found that food has anything to do with my symptoms.  Unless I am horribly sick, I eat whatever I want.  I do always try to eat healthy though.  My GI doc says diet has nothing to do with it......

Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 3/31/2008 12:56 PM (GMT -6)   
have they checked you for antibodies against remi? i develped them and now am getting ready to do the humira research study for uc.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 3/31/2008 1:24 PM (GMT -6)   
I have never heard of UC settling down in your 30s. that would be great, but I wouldn't put too much stock in it, personally.
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Cortfoam in AM, Rowasa in PM (is working wonders for me thus far)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 3/31/2008 1:34 PM (GMT -6)   
I don't think they tested me for the antibodies for Remicade, but the did do the test for the Imuran.  To make sure that it was working -or to make sure that I was taking enough.  Not sure which.

Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac

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