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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 3/31/2008 12:38 PM (GMT -6)   
hi there- I just got back from a check-up with my regular doctor- he wants me to get a bone scan due to all the steroids I've been on. All the docs I've seen, GI & not, recommend one- but for some reason I keep blowing them off. Have any of you had this done? i know the procedure is no big deal, & part of the reason I don't want one is because I don't want to take any other meds if the scan shows deterioration. So how many of you have had this done, & what were the results? Are you taking any meds for osteopenia? Did you get it from being on & off pred? I've only done 3-4??? pred courses, probably been on the 'roids a good year in total.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/31/2008 12:44 PM (GMT -6)   
Yes, bone density scans are super important. My first showed osteopenia of the spine. My second showed osteopenia of the hip and spine. My GP did prescribe Actonel, which I don't take. I'm afraid of some of it's side effects, including issues with dental work. My total time on pred is around 18 months. That was in two nine month shots. I didn't know the benefits of taking extra calcium while on pred.

The test is super easy. It's a good thing to have a baseline scan so you know what you're up against.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/31/2008 1:17 PM (GMT -6)   
I had a bone density scan done and it showed osteopenia of spine and hip. I haven't taken any meds for it. I've been able to get into remission for the most part and have combatted the bone thinning effects with weight bearing exercise, primarily heavy weight training. My last scan showed everything was back in normal ranges. You DO need to have it done to see where things stand. The scan is not invasive at all.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


toanova
New Member


Date Joined Dec 2007
Total Posts : 15
   Posted 3/31/2008 1:17 PM (GMT -6)   
One thing that is concerning is the medication can cause GI problems....as if we needed any thing else. I have a scan last week and I have osteopenia in the spine.  PCP and GI docs are trying to decide what if any meds I need to take.
4x3 Asacol
60/75 mg  of 6mp 
Remicade just started


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/31/2008 1:24 PM (GMT -6)   
The bone density test was the easiest and coolest test I ever took! I have never been on pred but I was on steroid enemas for about a year. That's why my primary wanted me to have the BD test. I had no bone loss which is good and you can watch the scan as it goes over your body - well depending on where you're laying that is. It took about 15 mintues.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 3/31/2008 1:26 PM (GMT -6)   
I had my first one a few weeks back.

they say that you should have one if you have been on pred for more than 3 months. This time around i've been on for a year. (better than the three on and off last big flare) but my scan was normal. They said I looked very good. I have made sure to be getting extra calcium, potassium, and general vitamins while on steroids.

All i had to do was lay on a table. it's not even an xray really it uses lasers. It took all of 2 minutes. the tech said i should come back in two years with the amount of steroids i've been on.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 5mg pred, 150mg Imuran
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 3/31/2008 5:01 PM (GMT -6)   
I had a density scan done a couple yrs ago due to recurrent pain in left hip. My internist & gastro wanted to rule out any bone loss from steroid use in the past, including a 3-month course of Pred & several rounds of Cortenemas. The scan took about 15 minutes on the table-- with about 3 shifts in position required to get at both hips & spine. I sort of felt like a hunk of meat at the supermarket check-out, having that scanner pass back & forth over my bod! Kind of creepy! My results were o.k.; I always drink lactose-free milk & otherwise try to keep up my calcium/vit D intake to protect bones. Best thing about this procedure was that my insurance covered it 100% -- hurray! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 3/31/2008 8:40 PM (GMT -6)   
I have an appt. to have a bone density scan next week. I've never had one before either. My GP and my old GI said I didn't need one, even after I had an ultrasound that showed I had osteopenia (My GP said a scan wouldn't be accurate for me since I was still young and the GI said that it wouldn't matter because at my age, 24, I am already losing bone density and there's no way to recover it...ummm..). But the GI at Mayo wants me to get one, and I"m happy, because I wanted one but couldn't get any doc. to order it for me!
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/31/2008 9:02 PM (GMT -6)   
My husband had one and definitely has osteopena from the prednisone. On Fosamax once a week and has gotten back to exercising a little more regularly so hopefully it will be reversed in due time.

What is nice is being able to be pro-active with this so why not have the test done so you can deal with it accordingly is my thought. Much better to know so you can do something to reverse it.

Now if there was only a simple way to try to reverse this DD.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


eliztopp
Regular Member


Date Joined Feb 2008
Total Posts : 46
   Posted 3/31/2008 10:54 PM (GMT -6)   
i had one done last summer becuase i was on pred for 6 months ( i wonder if they will have me do another one for being on pred for 4 months this year?) It was a super simple thing, all i did was show up and layed on a table. And it didn't show anything but it made me very nervous before taking it. But it ended up being nothing at all!
 
{[lizzielu]}
age 20, diagnosed december 2006
meds: Asacol 400mg 4 pills 3x a day; 6-mp 75 mg; iron supplament; one-a-day; protonix; prednisone 15mg (tapper, down from 40mg started 1/1/08)
low residue diet
Remicade????-- if i can't get off of the pred.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 4/1/2008 8:05 AM (GMT -6)   
well, I made an appt. for the scan in a couple weeks- I know it's a simple non-invasive procedure, which will be nice after all the super-invasive scopes! I suppose I should be more proactive re. bone loss, & I do eat tons of calcium, so I'm hoping it won't show anything.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/1/2008 9:49 AM (GMT -6)   
Good Eva - peace of mind if nothing else will be a relief rather than thinking about it in the back of your mind.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 4/2/2008 8:27 AM (GMT -6)   
I think I have a few extra aches and pains from the prednisone. I wonder if it could be a bone density issue.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 4/2/2008 9:22 AM (GMT -6)   
I've only been on Pred 3x for a total of about 10 months and I had early stages of osteopenia at 36 years old! It's something that is reversible if caught early so I would get the bone density done ASAP. I had no GI side effects from Fosamax and both my GI and OB/GYN said that after taking it for a year to a year and a half I would probably reverse the osteopenia (if I don't end up on Pred again!).
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema 2x daily
 

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