New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jawbone
New Member


Date Joined Mar 2008
Total Posts : 7
   Posted 4/2/2008 12:59 PM (GMT -6)   
I have some questions for the people who have gone through the proceedure for the j-pouch. What is the success rate, time frame from first surgery to the last surgery and until normal bm's? I would like to know some perspective from to people who have gone through it and how they feel now. My doctor has me on 6mp currently and said I am a candidate for the j-pouch.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/2/2008 2:04 PM (GMT -6)   
A consultation with a CR surgeon would answer many of your questions better than I, but I will attempt. The success rate for a jpouch is in the 90 percentile. You should visit www.jpouch.org for more comments on that. I opted for a 2-step procedure and had a temp ostomy for 8 weeks between surgeries. The second surgery is usually done by the preference from the surgeon and it ranges from 6 weeks to 3 months between steps 1 and 2. I felt "normal" immediately after the colon and rectum where removed which made recovery a lot easier. Everyone's recovery is different, there are no hard fast rules but you should see improvements in pouch function every 6 weeks for the first few months.

The surgeon in your area who gets the most positive comments is Dr. Garcia-Augilar out of UC San Francisco. If I were in NorCal he would be the man I would see.

BTW- I am in excellent health, take no meds, and am very pleased with the results.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


jawbone
New Member


Date Joined Mar 2008
Total Posts : 7
   Posted 4/2/2008 2:32 PM (GMT -6)   
Thx sue.. I found the web site after I post the questions. I am in good health and not malnurished. I have heard of the one step process with a tube in for a week afterwords.  I guess it al depends on your owen health.. thx for the doctor info...

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/2/2008 3:11 PM (GMT -6)   
You can ask for a one-step and provided you are in good health and haven't recently been on prednisone you would be a good candidate. The surgeon cannot guarantee it but will make the call once you are on the OR table and he/she can see what the state of your colon is.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, April 23, 2018 7:27 PM (GMT -6)
There are a total of 2,954,826 posts in 324,157 threads.
View Active Threads


Who's Online
This forum has 162188 registered members. Please welcome our newest member, Court725.
361 Guest(s), 12 Registered Member(s) are currently online.  Details
FATPRO, Nick_69, Old Hat, 3 putt, Girlie, LisaInIndiana, Lanah, Fairwind, JGB, ejc61, GidHike, Quilter2015