Any one else not taking their Asacol

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pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 4/2/2008 6:38 PM (GMT -6)   
When my UC is in remission I stop taking my Asacol medicine. Have started probiotics since last month and I take those religiously everyday. I have told my doctor about it. She recommends that I take the 6 Asacol tablets everyday even when I am in remission. Has anyone else read or know about staying of the medication when in remission. I am careful about my diet and am doing breathing exercises which seem to help. Thanks
Taking Probiotic  VSLN #3 amount 4 daily
Asacol during flare ups 6 daily during flare ups and then reduce it to 4.
Have had UC for the past 5 years.
Diagnosed as Moderate Pan Colitis.
Have psorisis along with UC and back pain.


daniella510
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 4/2/2008 7:23 PM (GMT -6)   
I have been on Asacol for many many years now and stayed on it regardless of whether I am in a flare or not. My doctor decreases when I am in remission for longer periods of time. It's always seemed to help me stay in control.

I've never taken probiotics but am considering it now that I am reading so many good things about it. Any good suggestions?
__________________________
 
Dx: UC since 1997
(pan colitis when Dx but none since)
Meds: Asacol (12 daily)
         6mp (50mg from Aug06 to Dec07)
         Prednisone (40mg currently for flare)


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 4/2/2008 8:11 PM (GMT -6)   
I am new, and not qualified to confirm what really works, but that said, I was at the Crohns and Colitis Foundation conference Sat., and the consensus was: The dose that gets you there, keeps you there. Don't go off of what got you in remission. It might save your colon. The case studies are filled with those who think they have "licked" the disease, and they start the slow slide to the horrible end. I am trying to get my daughter off the meds too: no one wants to stay on unnecessary pills; with icky side affects, BUT it is not worth losing your colon. Keep up with the meds., it is the safest route. Pro-biotics can supplement, not replace the real stuff, if you have a significant disease state.
Hang in there,
Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Rowasa, Asacol, Prednizone 50mg, major flare, Hosp. @U of C, Comers. IV steroid, no food, then low residue, home.
Now, began mp6, beginning taper of Pred, now 45mg, horrible acne, moon face, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/2/2008 8:12 PM (GMT -6)   
If you want to stay in remission longer and have fewer flares, keep taking your Asacol. You have a chronic disease; it needs chronic treatment.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 4/2/2008 8:20 PM (GMT -6)   
my nephew quits his to everytime he feels better but doesnt stay better long. I have taken mine faithfully for 5 years and have so for only had the one bad flare which was the one before I was dx with it . my second flare was very mild and caused by having to take asprin. been good sense. I personally would stay on them.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/2/2008 8:29 PM (GMT -6)   
When I used to take Asacol, they used to send me letters reminding me that I should make sure I continue the medicine even if I was feeling better. So I took 4, or so, when I felt like it... well later I found out the lowest maintenence dose is 6 pills a day. And then I found out I had gotten so bad that I had to start Remicade immediately and may need emergency surgery. I haven't been able to get well since....
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica started 1/17/08


BumTum
Regular Member


Date Joined May 2006
Total Posts : 304
   Posted 4/2/2008 8:34 PM (GMT -6)   
I went off my Asacol because I lost them (It's a long story).  The pharmacy couldn't refill my prescription for 30 days so I had to go without.  I did great for 3 weeks and then the symptoms started to creep back in.  I called the Dr. for some samples until my 30 days were up and could get the pills refilled.  As soon as I resumed the Asacol, I did OK again.  I'm stayin' on them.  They're gold.

  • Pancolitis since 5/06 at age 50, IBS since childhood
  • Degenerative Disc Disease/Spinal Stenosis - L4 and L5
  • Prescribed: Asacol, Atenolol, Zoloft, Synthroid, Menest
  • Prescribed: Xanax & Hydrocodone as needed
  • OTC:  Probiotic 15-35, Multi Vitamin, B Complex, Turmeric, Fish Oil, Biotin
 
 
 


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 4/3/2008 12:51 AM (GMT -6)   
i havent been so on top of my Asacol taking. Thanks for scaring me into being better abt it.
Its just when i rememebr, i have to go find water and im alwys on the run and theres a million excuses....


At a UC seminar i heard a tip that s/o puts their pill case in their shoe at night, so in the morning, there is no way to forget taking it.....
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 4/3/2008 4:08 AM (GMT -6)   

Thanks everyone! I will talk to my G doctor and ask her to recommend a safe dose. After reading all your responses I am scared now and will take this more seriously.


Taking Probiotic  VSLN #3 amount 4 daily
Asacol during flare ups 6 daily during flare ups and then reduce it to 4.
Have had UC for the past 5 years.
Diagnosed as Moderate Pan Colitis.
Have psorisis along with UC and back pain.


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 4/3/2008 4:33 AM (GMT -6)   
There's no need to be scared,just vigilant.My signature says it all,from Sigmoiditis,to Pancolitis.I fully believe that's due to my non compliance with meds,for several years.

The great thing about this board,is my mistake(and others,I'm sure will agree)doesn't have to be yours.I know how easy it is to think you no longer need the meds,you forget how ill you were,once in remission.Please keep in mind,that it's the meds that will keep you in remission.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;Pred,6 week tapered dose,starting at 40mg.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/3/2008 5:01 AM (GMT -6)   
I'm glad that you are going to talk to your GI pinkyb. We don't like taking these medications, we don't like having UC but we like to go on living our lives and for us unfortunately all three of those collide. Also by taking your Asacol, it has been proven to help decrease the chances of colon cancer.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/3/2008 5:55 AM (GMT -6)   
Don't be scared! Just be educated. I stopped taking Colazal cold turkey a couple of years ago and 2 months later ended up on Imuran b/c I couldn't get out of a flare. I know it is a total pain to take meds everyday but in my opinion I think worth it!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/3/2008 7:20 AM (GMT -6)   
I used to be the same way, I would feel fine and stop taking my asacol, then I would flare up. You will have reduced flare up's by staying on the meds.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007 - partial remission since 03/08
Prednisone 25mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your protiens!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 4/3/2008 7:47 AM (GMT -6)   
I stopped taking mine and was fine for awhile. But when the next flare hit it was by far worse than it would have been if i stayed on asacol. My UC went from left sided to pancolitis and now i can't get away from this flare (2yrs and counting)

No need to be scared. Asacol is a very safe drug of which very little gets into your bloodstream. Of all the drugs they give us asacol is one of the very safest. To me it's worth the annoyance of a few pills to help my colon stay well.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 5mg pred, 150mg Imuran
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30511
   Posted 4/3/2008 10:06 AM (GMT -6)   
Big price to pay if they're working for you and just don't want to take them.

You can take them twice daily.

4 - 6 daily is a good maintenance dosage...you should also supplement with a rectal med at least once or twice a week.

I've been on them for over 19 years...won't stop until they stop. My UC has never been as bad as the initial flare and my flares now are extremely minimal. A great pay-off.

Did you know that 5ASA meds...oral and rectal....at a maintenance level....can help protect your colon from cancer as well?

Another plus.

Question why exactly you don't want to take pills that have you feeling better.....I'm sure it isn't because you want to be sick.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 4/3/2008 10:38 AM (GMT -6)   

please, please, please take your asacol...i did the same thing many times.  I'm paying for it now...

Now I can't even take my 9 asacol a day...I'm beyond that and they switched me to all these different drugs.  If only I could go back and do it over...  


Diagnosed with UC 8 years ago/Diagnosed with Crohn's 6/26/2007
Canasa / 1 per day
Azathioprine / 100 MG Day
Colazal/ 9 per day
Entocort/ 3 per day
Humira
 
Tried:
Asacol / 12 per day
Levaquin 1 per day
Flogyl 1 per day
Rowasa / 1 per day
Prednizone / 40 MG Day( finished taper!!!) 
 


sodbuster19
Regular Member


Date Joined Sep 2007
Total Posts : 343
   Posted 4/3/2008 11:32 AM (GMT -6)   
When I was on Asacol, a few times I was doing great for months at a time, then I would stop taking them, and each time like within a couple weeks, I had bad flares that took about 4months to get under control. KEEP TAKING YOUR MEDS!!! Like my GI says, it's eaiser to keep stay in remission then to get back after a flare.
Good Luck

<FONT color=#0000ff>Bad flares Guniess & hot wings

Generic Colazal, 2 2xday
Acidophilus Probotic 3 times/day

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