I am new, and not qualified to confirm what really works, but that said, I was at the Crohns and Colitis Foundation conference Sat., and the consensus was: The dose that gets you there, keeps you there. Don't go off of what got you in remission. It might save your colon. The case studies are filled with those who think they have "licked" the disease, and they start the slow slide to the horrible end. I am trying to get my daughter off the meds too: no one wants to stay on unnecessary pills; with icky side affects, BUT it is not worth losing your colon. Keep up with the meds., it is the safest route. Pro-biotics can supplement, not replace the real stuff, if you have a significant disease state.
Hang in there,
Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Rowasa, Asacol, Prednizone 50mg, major flare, Hosp. @U of C, Comers. IV steroid, no food, then low residue, home.
Now, began mp6, beginning taper of Pred, now 45mg, horrible acne, moon face, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.