Anyone taking Imuran?

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twirliegirl
New Member


Date Joined Sep 2007
Total Posts : 14
   Posted 4/2/2008 8:25 PM (GMT -6)   
Ayone taking Imuran?  Getting ready to get weined off of prednisone an onto Imuran.  Kinda of concerned about the warnings of Imuran.
 
Presently taking:
 
Prednisone 40 mg
Rowasa
Colazal
Canasa

cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 4/2/2008 9:10 PM (GMT -6)   
I've been on it for 8 months now. Started at 125mg and now at 200mg. Only side effects seem to be that I get tired. I take mine in the morning and many take it at night to avoid this. When I started taking it at night once, I started flaring up. This was most definitely due to prednisone going too low and the Imuran at a non-therapeutic dosage. But not to tempt fate, I started it in the mornings again. Seems to be working.
Dx Left-sided UC Dec. 2006
Currently:
Azathioprine 200mg/day
Prednisone 5/2.5 (trying to taper-started at 60 6/1)
Lialda 2/day
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic, adrenal support


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/2/2008 9:10 PM (GMT -6)   
Welcome to HealingWell, twirliegirl. There are a lot of people here on Imuran. If you do a search, I'm sure you'll find a lot of discussions of it.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 4/3/2008 5:29 AM (GMT -6)   
I was on Imuran last year for about 6 months. It made me very nauseous so after speaking to the doctor slowly came of the medication. If it agrees with you then good luck hope you feel better with it.

Taking Probiotic  VSLN #3 amount 4 daily
Asacol during flare ups 6 daily during flare ups and then reduce it to 4.
Have had UC for the past 5 years.
Diagnosed as Moderate Pan Colitis.
Have psorisis along with UC and back pain.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/3/2008 6:51 AM (GMT -6)   
I have been on imuran for 2 years. I have a lot of fatigue but I am not sure if that is the Imuran or the disease in general. Remember it can take a few months to kick in!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 403
   Posted 4/3/2008 7:46 AM (GMT -6)   
Imuran has been wonderful in that it finally got me off of the prednisone. There was a long period of a few months where it would make me nauseous, but taking it only with a big meal helps that.

Imuran does take a few months to start working to its full effectiveness, so be patient.
12 Asacol
100 mg Imuran


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/3/2008 8:01 AM (GMT -6)   
Imuran is what made the difference for my husband. He became steroid dependant and every time he tried tapering off the prednisone it would flare terribly. May '07 hospital admission imuran started along with 40 mg of prednisone and a very very slow taper (stopped the prednisone early Dec 07) and the 75 mg of Imuran in May 07 was increased by Mayo Clinic to 150 mg in Oct 07/

Mid May to July 3rd - about 6 wks we noticed a difference in that the frequency and BMs started to show some control and he was able to abandon his being a "recluse" and go out for a few hours. It improved slowly bit by bit and by Sept/Oct he was doing much better.

He is fatigued - has to push himself sometimes to do things - not in a full remission - but having hit rock bottom and knowing what that was like he is grateful to be about 80-90% most days. He says if he started out the way he feels now on a daily basis he probably would not be a happy camper but when you can compare the lowest of lows and have some semblance of a life as he now has he is grateful for what he does have. Kind of strange but when you put things in perspective and know that so many out there are battling much worse he can accept it more readily.

He also takes the cortifoam 4-5 times a week at night - initially every day in the am and pm and that also helped a great deal too we think.

When we went to Mayo I had a number of questions about Imuran and the specialist there told me "I know you are having concerns about this drug - let me assure you it is a safe drug if monitored correctly." Every month my husband has 3 blood tests - the results are faxed to the Mayo Dr - he reviews them and his office calls in a prescription for 30 days - we are doing this for a year. After that I am not sure if it will be every 3 months or what but that is how he is being treated at the moment.

Hope this helps you and your concerns.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/3/2008 8:18 AM (GMT -6)   
i'm on the generic of imuran, azathioprine and mostly tiredness, is what I get from it. I am on pred right now too, so once I get off the pred, I am not sure how tired I will really be.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007 - partial remission since 03/08
Prednisone 25mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your protiens!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/3/2008 8:26 AM (GMT -6)   
I guess he is less tired now that the prednisone is gone but he is still quite fatigued which interferes sometimes. He has to force himself to get up a lot of times and get moving. For the most part since we are retired it is not a big deal and we can work around it. Not so easy for most of you younger people with responsibilities that must be tended to regardless if you are tired.

It is disappointing that he gets so much rest and still feels sleep deprived but I guess it's the nature of this beast???????

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 233
   Posted 4/3/2008 5:44 PM (GMT -6)   
Imuran put me in remission, and I believe has kept me in remission for 3 years now.

I have nothing but wonderful stuff to say about this magic pill. No drugs are for everyone, and I was geared for some side effects. I have had none.

I hope to never see prednisone again. mad

Good luck!
Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!

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