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iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 4/3/2008 4:32 AM (GMT -6)   
For the past 3 weeks or so, I've been having a lot of gas and pain/spasms in the upper left area of my colon. Its usually worse in the morning and early part of the day. I've been taking the anti spasmatic pills everyday-usually one to two a day. I hate feeling like this! I woke up this morning with extreme gas and pain in that area. Does anyone suffer from this? I had to call in sick and lose a day's pay. I hate doing that but cannot see myself teaching for 7-8 hours today with pain all over my body.
 
I am on prednisone right now for UC related arthritis and tapering off. I am also taking Fiorcet daily(2-4) times a day for my headaches. I usually take one in the morning and then two or three throughout the day. My doctors said its fine to do that. Sometimes I've noticed the gas gets worse after I take the medication. I never had that problem before.
 
I've noticed some mucous in my stools but no blood. I've been feeling very "down" lately due to the prednisone. It changes my moods tremendously.
 
I am just venting but does it sound like I am flaring? I hate not feeling well. What can I do to start feeling better?
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/3/2008 8:14 AM (GMT -6)   
It sounds like you're flaring. It could be the pred that you're on for the arthritis that's holding it from getting worse. Perhaps it's time to start with the nightly Rowasa again?

Feel better soon :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30382
   Posted 4/3/2008 10:10 AM (GMT -6)   
I'd say probable...especially with tapering the pred.
 
 Start the Rowasa...regardless. You can do nightly for a week, see how you feel. If it's improved, do another week and then start to every second night.

That's what I'd do anyway.


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 4/3/2008 11:48 AM (GMT -6)   
Iam taking Canasa suppositories every night. The doctor wanted me to stop the Rowasa enemas. I will have to admit that I have not been taking my medications regularly. I've noticed that once I take my 3rd round of Colazal pills along with 6-Mp with dinner, I get very nauseous to the point that I have to force myself to vomit to feel better. I am in a lot of pain and discomfort right now, especially my lower left side. :(
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/3/2008 12:22 PM (GMT -6)   
That all sounds like flaring issues to me. Sorry.

Why did the doc want to stop the Rowasa?

Perhaps increase the Canasa to two or three times a day?

The LLQ pain sounds like the inflammation has progressed to that area. In the past week I've been able to follow (what I think the) inflammation's path has been... I can point every turn my colon makes :(

Do you know if it's the Colazal or the 6MP that's causing the nausea? Maybe take one with supper and take the other before bed? As an experiment to see?!?!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 4/3/2008 2:19 PM (GMT -6)   
The problem is I take 9 pills a day of Colozal.....I am wondering if I should take my medications with small meals or with light snacks....

Boy, prednisone is really brutual! I just starting crying for 5 minutes straight for no apparent reason.

I am going to see my gastro doctor this Wednesday.....Maybe I need to change my stress management and diet...
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/3/2008 6:39 PM (GMT -6)   
I'm on 12 pills of Asacol a day and the recommended three times a day dosing didn't work for me. I was always forgetting at least one dose. So, I take it in two doses. Would it be possible to split your dose into two sets a day instead of three?

I suggest taking all supplements and meds with some sort of food. I developed gastritis from taking pills on an empty stomach. Even a small glass of milk helps the cause - or a few crackers. (Oh cheese and crackers sound good - darn pred cravings!)

Yes, the pred moods are brutal! Three days after starting this round, the 'roid rage started out of no where. I was completely in shock.

Make sure to ask your doc all of your questions. Maybe there is something s/he can recommend that we don't know about.

Hang in there!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30382
   Posted 4/4/2008 12:21 PM (GMT -6)   
Why did the doc want you to stop the Rowasa?

You're flaring.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 4/6/2008 2:43 PM (GMT -6)   
He wanted me to stop the Rowasa because he felt the canasa suppositories work better. Also, being a teacher, I cannot afford to elave my students alone while I run to the bathroom. :(

Heather
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 4/6/2008 3:42 PM (GMT -6)   
Did you talk to him about possibly changing your meds? I had a severe allergic reaction to Colazal. I had a nasty rash and it put me into a flare worse than the original one!

The canasa work great for me. But we are all so different. Different combinations of meds, diets, etc. So maybe your current regimen is making things worse instead of better. Maybe it's time for some slight changes....including your GI. If you think you aren't getting good "service" from your GI, maybe it's time for a new one.
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007

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