I have mixed reservations about
this....but I am not the one who is sick with this so I will let you know how he has been able to cope with this.
Since his hospitalization in May 07 the pain management that was prescribed he is still following - these meds are prescribed on a monthly basis - he has a fentanyl patch 50mcg that he changes every 3 days (he has not and has never had the ones that were recalled and there were problems with) and a small morphine sulf pill he takes twice a day 12 hrs apart. That may seem like a lot and maybe some may be thinking "addictive". (As I said I have concerns about
this as well) But all I can tell you is without these he would not be able to function. These meds never have and do not seem to have any kind of effect other than allowing him to be functional.
He does not need to use the darvocet or lortab IN ADDITION to these meds as he had to do for quite awhile after his hospital discharge as the fentanyl and morphine were not enough. So depending on your pain level and your doctor's point of view concerning this maybe trying these meds may help you.
I was keeping a very comprehensive log of the pain meds he used to supplement the daily regimine and it was quite often to try to keep himself functional and it is almost nil now. If he has a super overactive day and or a very painful large elimination that seems to get his pain out of whack he may take a darvocet but that is far and few between now which is really a major improvement. And even at that before he just "pops" a darvocet he will lie down, rest and see if things will quiet down on their own.
His local doctor here just doesn't believe in seeing her patients in pain - of course she wants to see him be off these meds too but she also knows he is not reckless and not abusing these also. His age may be a factor in this...if he were a lot younger maybe it might be different. That could very well be part of the reticence on the part of the doctors out there regarding a lot of you in this boat??? His Mayo Dr also supports the care and supervision of the local Dr here which puts my minda at ease as I was concerned about
the daily pain regimine too. We see the Mayo Dr again in mid May so it will be interesting what he thinks about
his progress since he last saw him in October.
Hope this helps.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month