Prescription pain meds

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Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/3/2008 5:25 AM (GMT -7)   
I was talking to my pain doc yesterday and he mentioned that I need to get better control my pain because I told him that I take Tylonel and it barely touches the pain and that I take them every 4-6 hours.  He said that is too much and would like me to start on something a little stronger.  He knows that I have Uc and have to avoid anti-inflammatories so he sort of let that go for the time being.  He wants to see what the rheumy doc says when I meet with him on Monday.  So I got curious as what any of you take for pain in regards to prescription and it has no affect on your Uc.  My pain doc asked about Ultram.  I took that years ago after one of my surgeries but I remember that I woke up in the middle of the night with hallucinations but I can't remember if it affected my Uc any.  So I'm thinking that med may be out of the question because I really don't want to start seeing things again!  Any other ideas or suggestions?  I really hate the idea of starting anything narcotic since that DOES affect my Uc by causing constipation but dang, I need some relief from this relentless pain.  sad    Or maybe I should ask in the arthritis forum?? 
 
Oh and btw, the leading diagnosis that both my primary and the pain doc are thinking that I have is either RA (possibly another form of arthritis) or Lupus.  So cross your fingers for me when I see the rheumy doc that whatever it is that I have that it's fixable!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 4/3/2008 5:34 AM (GMT -7)   
i don't know very much about any of the drugs so take what i'm saying with a large grain of salt, my dad has rheumatoid arthritis
and the dr was treating him with prednisone, and then began switching him to
methotrexate- i believe these are both uc drugs too. they both conrtolled his pain.
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day


puglover13
Regular Member


Date Joined Aug 2007
Total Posts : 25
   Posted 4/3/2008 5:37 AM (GMT -7)   
My doc prescribed Tylenol with codeine which really helps the pain and has a side effect of mild constipation, which for me, just stops the diarrhea which is a plus.  I don't get constipated from it at all.

Diagnosed UC June 2007 (mis-diagnosed with IBS for 3 years)
Current meds: Asacol 9/day, iron, multivitamin.
6-MP 50mg, Cortenema, Remicade, Lexapro 10mg/day


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/3/2008 6:19 AM (GMT -7)   
I have mixed reservations about this....but I am not the one who is sick with this so I will let you know how he has been able to cope with this.

Since his hospitalization in May 07 the pain management that was prescribed he is still following - these meds are prescribed on a monthly basis - he has a fentanyl patch 50mcg that he changes every 3 days (he has not and has never had the ones that were recalled and there were problems with) and a small morphine sulf pill he takes twice a day 12 hrs apart. That may seem like a lot and maybe some may be thinking "addictive". (As I said I have concerns about this as well) But all I can tell you is without these he would not be able to function. These meds never have and do not seem to have any kind of effect other than allowing him to be functional.

He does not need to use the darvocet or lortab IN ADDITION to these meds as he had to do for quite awhile after his hospital discharge as the fentanyl and morphine were not enough. So depending on your pain level and your doctor's point of view concerning this maybe trying these meds may help you.

I was keeping a very comprehensive log of the pain meds he used to supplement the daily regimine and it was quite often to try to keep himself functional and it is almost nil now. If he has a super overactive day and or a very painful large elimination that seems to get his pain out of whack he may take a darvocet but that is far and few between now which is really a major improvement. And even at that before he just "pops" a darvocet he will lie down, rest and see if things will quiet down on their own.

His local doctor here just doesn't believe in seeing her patients in pain - of course she wants to see him be off these meds too but she also knows he is not reckless and not abusing these also. His age may be a factor in this...if he were a lot younger maybe it might be different. That could very well be part of the reticence on the part of the doctors out there regarding a lot of you in this boat??? His Mayo Dr also supports the care and supervision of the local Dr here which puts my minda at ease as I was concerned about the daily pain regimine too. We see the Mayo Dr again in mid May so it will be interesting what he thinks about his progress since he last saw him in October.

Hope this helps.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/3/2008 6:33 AM (GMT -7)   
Thanks for the replies. I have mixed feelings about precription pain meds too. On one hand, they take care of the pain but on the other hand, they either make me sleepy, have hallucinations, constipates me or gives me migraines. I'm sort of in the darned if you do and darned if you don't category. I'm allergic to sulfa and codeine so that narrows my pain meds a bit. I break out in hives and get major intestinal pain from sulfa and codeine (oh and vicodin) causes me migraines, the ultram give me hallucinations - LOL My pain doc said I was one of his more interesting patients! Somehow I seem to be getting that a lot lately! But I've also have tried Neurontin, Flexeril, Skelaxin and plenty of physical therapy. Neurontin worked the best because most of my pain is nerve related. Plus I've had 2 epidural injections so far. Nothing seems to work for long though. It's almost as if my body rejects it or becomes accustomed to it too fast and then stops working.

Isn't there a magic med out there that is like Tylonel without the narcotic and addicting affect??
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 4/3/2008 7:26 AM (GMT -7)   
I used Percocet after my c-section and it didn't cause any UC issues. It is acetominophen (Tylenol) based - not an NSAID. I don't know anything about long-term use of it, but you may want to ask your doc. It really worked on the c-section pain.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Moo
Regular Member


Date Joined Mar 2008
Total Posts : 20
   Posted 4/3/2008 9:46 PM (GMT -7)   
Ultram was really hard on my stomach and didn't seem to help much with my arthritis pain.

I take Mobic for arthritis, but I believe it is an NSAID. Since I have been fairly well controlled for quite some time (except for three mild flares in the past few months), it doesn't seem to bother me too much.

I occasionally take Darvocet if I'm having trouble sleeping, but am nearly out of those sad

Post Edited (Moo) : 4/7/2008 10:23:31 PM (GMT-6)


tired of goin
Regular Member


Date Joined Mar 2006
Total Posts : 117
   Posted 4/7/2008 11:14 AM (GMT -7)   

I'm bumping this threat up because I am interested in knowing too!  I have UC and fibro, and lately the muscle and joint pain has been really bad.  I know that I would feel better if I could exercise, but it hurts to even think about it!   I used to take Vioxx while it was still available; I loved it and never had any problems with it (fortunately for me).  Anyway, I am also looking for some pain med that is not a NSAID.  I don't even bother with Tylenol anymore, and I have also tried Ultram, but it did nothing. 

Suggestions???  Thanks Red for posting this!!!

 

 


tired
 
*************************************
diagnosed with UC 10/05 (currently flaring)
diagnosed with fibromyalgia 12/06
 
Colazal   750 mg  9 per day
Effexor XR  75 mg   1 per day
fish oil, multivitamin, calcium, Zomig for migraines
colocort as needed
 

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