princesa-dr hoffman

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 4/3/2008 5:30 AM (GMT -7)   
i have been thinking abouttaking my daughter to dr hoffman.did you have serious flares-were you on the the uc meds- i guess what i want to know is did
he really make a difference or were you not in a bad way when you saw him?
thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2201
   Posted 4/3/2008 7:00 AM (GMT -7)   
I haven't personally seen Dr. Hoffman yet, but I plan to - hopefully later this year. I have to prepare myself financially because I doubt if my insurance will cover treatment and, for me, it involves a flight to NYC, accommodations, etc.

I'd think seeing Dr. Hoffman would be a particularly good idea for folks who aren't responding to traditional meds. However, his site plainly states if you aren't willing to commit to some major lifestyle and dietary changes, you should probably look elsewhere.

http://www.drhoffman.com/page.cfm/414#Q8


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 4/3/2008 7:27 AM (GMT -7)   
i saw his website and i know what you mean about the strict adherence to his lofestyle reccommnedations. but before i go to him-because he doesn't accept insurance i'd like to hear from someone who had uc success from his program.
in the end i may just go anyway when she finishes the sememster and is back in ny
thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 4/3/2008 8:44 AM (GMT -7)   

Please, email me when you get a chance, and I will tell you what is working for my 17 year old son. We are using a nutritionist, as well as a new GI doc.  He is doing GREAT. martha@sc.edu. P.S. I am not trying to sell anything.  Just a Mom making a suggestion.

 

 


UC Mom
Son diagnosed 10, 2006 at age 15
Prednisone
6MP (just started 50 mg per day)
Culturelle Probiotic
Multi Vitamin


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2201
   Posted 4/3/2008 2:49 PM (GMT -7)   
UC Mom, why don't you share details with all of us?

PLEASE, have you read through the testimonials on Dr. Hoffman's site?
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 4/3/2008 7:10 PM (GMT -7)   
I will be glad to, however I guess I am afraid some on this board will think I am crazy.  I am not.  I took my son to see a nutritionist who had a son that had been diagnosed with Crohn's years ago.  He made it his mission to learn all about IBD. He sent my son's hair sample to Arizona for mineral testing and the results came back with sodium and potassium inversion.  It also states weak adrenal gland activity, causing him to retain excessive amounts of heavy metals. Some other levels were not normal (four low electrolytes), and my son began a protocol of vitamin suppements.  Now he also switched GI's after all of this testing who took him off of Asacol because it was no longer working, and switched him to a 40 mg. of Pred. and 50 mg of 6mp .  So, the obvious question is....is it the 6mp and Pred. or the supplements?  Honestly, I do not know.  All I know is that my son appears to be 100% normal.  He has tapered to 10 mg of Pred. with no problem (knock wood), and eats whatever he wants with no problem. He is energetic and happy.  Seems to be in complete remission. We will do another hair analysis in 2 months.  I guess that will tell more as far as changes due to the supplements.  There will be some of you that think this is BS, and I don't blame you. I also do not want to give any of you dear people false hope. There was a post on here a long time ago about mythyelators (sp) and that is what got me thinking in the nutritionist/holistic direction.  Like I said before, I am not selling anything or trying to give false hope. 
UC Mom
Son diagnosed 10, 2006 at age 15
Prednisone
6MP (just started 50 mg per day)
Culturelle Probiotic
Multi Vitamin


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2201
   Posted 4/4/2008 7:14 AM (GMT -7)   
I'm a big proponent of dietary manipulations and natural supplements; however, as long as he's on pred and 6mp, you won't be able to convince people the work with the nutritionist should be credited for his success. I think a combination of approaches is very wise. I'm glad to hear your son is doing so well.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 4/4/2008 7:19 AM (GMT -7)   
Thanks. I believe that the medications are getting the colon straight, while the supplements are helping his overall health. I will know more when he comes completely off of the Prednisone, I guess. One day at a time, and today is great :)
UC Mom
Son diagnosed 10, 2006 at age 15
Prednisone
6MP (just started 50 mg per day)
Culturelle Probiotic
Vitamin Supplements
Actonel


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5151
   Posted 4/4/2008 8:34 AM (GMT -7)   
Yes, UC Mom, the tricky part is figuring out what will keep him in remission, assuming that the Pred & 6MP get him there. That's interesting about adrenal gland function/retention of heavy metals in the body. Did you discuss that with the new gastro? / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 4/4/2008 8:46 AM (GMT -7)   
No, but I plan to discuss it on Tuesday at his appointment. We just switched GI's recently, and I did not want to mention the nutrionist angle right off the bat at our first appointment. I wanted him to get to know us a little better :) I am going to take the information to him to evaluate, and hope he does not poo poo it. If he does, we may be switching again!! Have a great day!
UC Mom
Son diagnosed 10, 2006 at age 15
Prednisone, down to 10 mg. per day
6MP 50 mg. per day
Vitamin Supplements
Actonel once per week while on Pred. 

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