Just want to say thanks!

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Lew1201
Regular Member


Date Joined Mar 2007
Total Posts : 111
   Posted 4/3/2008 7:43 AM (GMT -6)   
Do you ever feel like you are totally going through this alone (and it's not even me, it's my son). The doctors start to act frustrated because nothing is working.  My mom says things like, "when I had this....." , even though I try to tell her she doesn't have this.  He finally joined a "facebook" group for teens with UC. I don't know how much he posts. I think right now he just reads alot.  Well, I just wanted to say thanks to everyone out there that reads and posts and supports and advises because you really get it and you really care even though none of us really knows each other.  THANKS!!!!!!!!
Mother of 18 year old son
Remicade
6MP 100mg


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/3/2008 7:52 AM (GMT -6)   
UC is very much a disease of isolation and I think it's hardest on kids. No one wants to talk about or hear about bowel issues. Thank goodness for the internet! There was no internet when I was diagnosed so meeting people with UC was near impossible. Finally our small town started a CCFA meeting and I was able to meet other UCers and Crohn's sufferers. After 10 years of UC I finally met someone else with the disease, it was a blessing to be able to share and connect in a very open, honest, and supportive environment.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/3/2008 8:12 AM (GMT -6)   
I totally agree Sue! I had already had UC for about 12 years before I got the internet and found HW. I felt very isolated and thought that I was the only one. Uc can be so cruel to kids and teens but I feel it's very important for them to share their feelings with others that are going thru the same thing. Just so they know that no, they aren't alone in this fight. I think that with a proper support system that they will become stronger individuals then a normal healthy child/teen because if they can handle being sick - they can handle anything! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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