Remission and no meds - Hurrah

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

BOB59
Regular Member


Date Joined Nov 2005
Total Posts : 151
   Posted 4/4/2008 9:05 AM (GMT -6)   
I haven't been visiting this forum as I used to.  The reason is very selfish. I have been doing very well.  about 3 years ago I learned about the SCD here from other forum members that exchanged information about this diet. Some defended it and some said it didn't work.  I gave it a good trial.  Only after 6 months into the diet I started to notice some improvement on my condition. One year on the diet (still taking meds) I got much better and introduced more advanced legal food.  On the second year into the diet I started to have periods of remission - no symptoms. But, at that time I did not stop taking meds, only reduced the doses.  Now on my 3rd year I have been so well for so long I decided to stop taking meds (my GI knows about it) and am doing great.  I still do not want to take risks and continue to follow the SCD fanatically, but am now eating all allowed foods which makes it much easier to bear.
I just hope that by reporting here my successful experience I may help a few of you going through the terrible effects of this terrible disease that finding no significant improvement may be determined to do something about it, even though this diet requires a very strong will power and total comitment for a long time. 
Do get better
Bob59
bob59
 
UC (sigmoid) since 2002
B12, folic acid, magnesium and acidophilus
symptoms free since Feb 2007
on SCD since Dec 2005


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 4/4/2008 9:09 AM (GMT -6)   
Congratulations Bob! You deserve to succeed with that kind of determination, I'm glad it has worked out for you!
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March


Bigphule
Regular Member


Date Joined Dec 2007
Total Posts : 137
   Posted 4/4/2008 9:20 AM (GMT -6)   
SCD diet?
Diagnosed UC 12/2007
 
 
Folic Acid 1mg x 1/day ~ On going
Asacol 400mg x 6/day ~ Failed (Allergic)
Prednisone 30mg x 1/day ~ On going recent change 2/26/2008
Sulfasalazine 1g x 3/day ~ 2/26/08 


me,too
Regular Member


Date Joined Mar 2007
Total Posts : 97
   Posted 4/4/2008 10:58 AM (GMT -6)   
Thanks for having the courage to post about food remedies. I appreciate your honesty about the amount of time it took to get better. I, too, hope to get off asacol, but am prepared to wait until things are better.

I do have a question. I'm doing something similar after two near death experiences with severe universal/pan colitis that required remicade and prednisone treatments (which I'm not on anymore), but not quite SCD (I'm doing the maker's diet). Do you make your own yogurt? Can you eat almonds?

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/4/2008 11:09 AM (GMT -6)   
BOB59 - so very happy to hear about your success with the SCD!!! It's wonderful to hear you're doing so well.

Bigphule - SCD is the specific carbohydrate diet. Google for more info.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


elliekate
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 4/4/2008 11:41 AM (GMT -6)   

 Hi Bob,

I've been following the SCD diet for 2 1/2 months, but already I've seen significant improvement. After a bad flare, I'm tapering off of prednisone and am now down to 20 mg. I haven't had any problems tapering so far and I don't expect to (although this is my first major flare in a long time). I expect I will continue to take Lialda after the prednisone course is over, but I will faithfully follow the SCD diet for as long as it takes. The diet is a miracle - it really works! I believe (and this is only my opinion) that the Specific Carbohydrate Diet and other diets like it are the only way to keep IBD under control. I know there's no cure for IBD, but drugs alone often do not maintain periods of remission for any length of time. Thank you for writing about your experience with SCD. I'm a new member and I wasn't sure if it was an acceptable topic on this forum.

 

EllieKate
SCD 2 1/2 months
prednisone 40 mg
Lialda 4/day
Assorted vitamins
Assorted probiotics 7/day


quincy
Elite Member


Date Joined May 2003
Total Posts : 30411
   Posted 4/4/2008 12:23 PM (GMT -6)   
Bob..thanks for the update. Happy you're feeling well!
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 26, 2018 11:09 PM (GMT -6)
There are a total of 2,956,131 posts in 324,293 threads.
View Active Threads


Who's Online
This forum has 162265 registered members. Please welcome our newest member, UglyLoser.
273 Guest(s), 5 Registered Member(s) are currently online.  Details
MomOfUCBoy, serruyo, Adagio, Ila24x7, suchatravesty