had my colonoscopy this am.
Good news: no inflammation - YAY!
Bad news: scarring throughout my colon from last flare up. Diagnosis changed from proctosigmoiditis (left sided colitis) to pancolitis. Dr. thinks this is from my last flare up and in retrospect this was different from my first flare, this past time going to the bathroom 25+ times a day, horrible cramping and pain, in addition to the blood, mucous of the first time.
Also, I did have a sigmoid polyp (likely inflammatory) and I do have hemorrhoids.
I talked to him briefly after the procedure, got some lovely pics of my colon (wont be hanging those on my wall).
I meet with him to go over everything in a couple of weeks. I am nervous about having pancolitis, I think that will change the severity of my flares from before? Though I am not too sure, I have not researched that.
Also, I am nervous about the azathioprine not working and I will likely be on 5mg of pred for another year. Doc says that if the aza is not working I will likely flare around 15mg of pred.
I was so hungry on the way home I had my DH stop to pick up kentucky fried chicken.....now I feel like crap! uuuugh, bad decision!
Any questions, I should ask my Doc at the next visit?
Beth, 32 ~ Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007 - partial remission since 03/08
Prednisone 25mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your protiens!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.