Just Had Surgery

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KeithK
New Member


Date Joined Apr 2007
Total Posts : 4
   Posted 4/6/2008 7:49 AM (GMT -6)   
Hi, I am 25 years old and after almost 5 years of battling UC, and having a flare for the last year and a half, I had a Subtotal Colectomy about two weeks ago.  Not gonna lie, I FEEL GREAT!! but I am a little worried, because I mainly hear people getting the J-pouch done, and not a Sub-total.  But both by GI and my surgen rec. a sub-total because they said my rectum is healthy enough, and I should be able to manage that small area fairly easy.  Has anyone else has a Sub-total done for UC??
Asacol  (400mg) 12 pills a day
6mp
Colozal
Remicade (4 visits w/increase of doasage)
Prednisone  (hate the side effects)
Goin for the J-pouch July 31st


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 623
   Posted 4/6/2008 7:51 AM (GMT -6)   
Don't know the answer to your particular question, Keith, but it sure is great to read you feel great!

Congrats!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/6/2008 7:59 AM (GMT -6)   

Keith,

I haven't encountered anyone who was successfully able to keep their rectum.  Usually more surgery is required.  I would suggest you post this question at www.jpouch.org  You will probably encounter folks who had similar surgery but eventually had to have the rectum removed.  I am curious though, your signature line says you are having a jpouch in July yet you desire to keep the rectum?  This is confusing to me as the jpouch replaces the rectum.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/6/2008 8:10 AM (GMT -6)   
I also don't know the answer to your question. However, I am super happy to hear that you're feeling great post-UC. Many congratulations!!!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


KeithK
New Member


Date Joined Apr 2007
Total Posts : 4
   Posted 4/6/2008 8:13 AM (GMT -6)   

Sue,

For some reason, my signature from the control panel has not updated.  I was going for the J-pouch surgery.  But after much thought and many test, Both my G.I and my surgen and I all agreed that a sub-total colectomy would be the safest and best bet for me (due to my age and condition of the colitis).  But I feel better now than I have in years.  I have greatly reduced my bowel movements, and greatly increased my energy level.  I was just wondering if anyone else had this done, or am I the test rat LOL....  I checked out J-pouch.org but most of those had a sub-total colectomy with a temp. bag, but mine was a one shot deal (knock on wood)..........

 

 

I haven't encountered anyone who was successfully able to keep their rectum.  Usually more surgery is required.  I would suggest you post this question at www.jpouch.org  You will probably encounter folks who had similar surgery but eventually had to have the rectum removed.  I am curious though, your signature line says you are having a jpouch in July yet you desire to keep the rectum?  This is confusing to me as the jpouch replaces the rectum.

Sue


Diagnosed with severe left sided U.C. in late 2003
Asacol  (400mg) 12 pills a day
6mp
Colozal
Aloe Vera
Endocort
Remicade (4 visits w/increase of doasage)
Prednisone  60mg, 55mg, 50mg, 45mg, 40mg, 35mg, 30mg, 25mg, 20mg, 15mg, 10mg soon to be 5mg than ZERO!
Just had Sub-total Colectomy on March 20th.  Feeling Great!!


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/6/2008 4:21 PM (GMT -6)   
Hey Keith - fantastic news - I wouldn't worry too much right now - enjoy your newfound comfort and energy - I assume your doctors discussed and weighed all the options and what was correct for you at the moment.  HOPEFULLY that is the end all  & be all for you!!  Very happy for you.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 4/6/2008 4:38 PM (GMT -6)   
Good for you! It's always great to hear from someone that feels good about their decisions and the outcome!

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 4/6/2008 9:18 PM (GMT -6)   
So happy for you...take that old nasty colon they removed and run it over with your car tongue

princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/6/2008 9:30 PM (GMT -6)   
I am happy you are feeling so great. I think you should talk to your doctor about your concerns and ask what types of symptoms you should keep an eye out for in case your rectum acts up, and what meds would you take or what you would do. Then you could have a plan and relax and enjoy your current health!
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


nickkeckn
New Member


Date Joined Apr 2008
Total Posts : 1
   Posted 4/7/2008 4:52 PM (GMT -6)   
Hey there keith i had surgery about 8 years ago and was able to keep thing intact had the colostomy for 3 months and then the reversal def helped. ive had my issues over the past 8 years but they found out my rectum had enlarged itself  10  times its normal size so had to go through therapy for my anal muscles and gettin colostomy takin back off but it will def be an improvment

KeithK
New Member


Date Joined Apr 2007
Total Posts : 4
   Posted 4/10/2008 5:32 PM (GMT -6)   
I just wanna give everyone and update.  Besides wheening off the pain meds, I feel good.  I still have a drainage bag in me, but for a one step surgery I feel great.  I have maybe 5-6 BM a day which is a lot less than it was before.  Before surgery use to be more like 15-18 bm a day.  I go to see my surgeon on Monday and we will see how everything is looking.  I am keeping my fingers crossed.  Wish me luck.
Keithm
Diagnosed with severe left sided U.C. in late 2003
Asacol  (400mg) 12 pills a day
6mp
Colozal
Aloe Vera
Endocort
Remicade (4 visits w/increase of doasage)
Prednisone  60mg, 55mg, 50mg, 45mg, 40mg, 35mg, 30mg, 25mg, 20mg, 15mg, 10mg soon to be 5mg than ZERO!
Just had Sub-total Colectomy on March 20th.  Feeling Great!!


gypsy357
New Member


Date Joined Jul 2003
Total Posts : 16
   Posted 4/11/2008 12:42 AM (GMT -6)   
thats wonderful you feel great
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