Has switching doctors helped anyone? (vent included LOL)

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/6/2008 5:44 PM (GMT -6)   
I am frustrated.  I have decided to give Humira a fair chance and I will.  But I am disappointed with my GI and am wondering if I should look for someone else.  But, I don't know what else anyone could do for me.  The only thing I can think of that may make a difference is that my GI rushes through colonoscopies like it's some sort of race and he may be missing something?  I can't understand why I am SO SICK with only rectal problems and why nothing works.  Is it that I am just one of the untreatable?  During my last doctor's appointment, my GI totally went against a few things he told me during my previous visit.  I SWEAR, swear swear that he said as a last resort, a surgeon could dialate my rectum and cut away the rectal ulcer and see what happens.  Well on my last visit, I said I would like to give that a try and he told me he had never said such a thing, that it would be considered malpractice to do that surgery on a person with UC.  Then he said well he is not certain I don't have Crohn's but he swore to me that he had never recommended that surgery to me!  I know he did and I told him that!  He said I was wrong!  Then when I asked him what tests I could take for Crohn's, and he said well when was your last upper GI SBFT, I said uh, NEVER!  And he said surely you have had it!  And looked though my chart desperately trying to find some proof!  Hmph!  He didn't find them, because I never had them!  I am starting to wonder if he has me confused with another patient, or he is crazy, or what!!?  I wish I lived in a bigger city, cause I would look for someone else.  Sorry for the long vent.  So, have any of you seen better improvements with a new GI?  What did they do differently?  Should I quit this GI?
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5169
   Posted 4/6/2008 6:11 PM (GMT -6)   
So sorry to read that your gastro treats you like this! I really did think that you needed to change when you wrote some time back that he wanted to do surgery on the rectal ulcer. My own gastro has treated cases of solitary rectal ulcer successfully with Rifaximin. Where are you located? It could be that members have recommendations for more knowledgeable specialists somewhere near you. I find it outrageous that a young adult like yourself, with family responsibilities, should have to suffer due to inappropriate or uncaring medical treatment. (Could it be that the jerk read our previous comments on your earlier thread about him? LOL.) / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/6/2008 6:29 PM (GMT -6)   
In my 17 yrs with IBD, I have gone through 4 GI's and it was worth it to get to the one I have now, especially since he's a lead researcher for crohns and colitis in Canada, he's totally on board with natural supplements and probiotics of course as in my opinion, any good GI knows the need for probiotics and he doesn't have his head in the sand when it comes to an IBDer also being able to suffer with IBS as well...too many times I'll read posts that their docs are totally against any of the above and the way I see it, it's my health not theirs and if they're not on board with current info and have an open mind then they're simply not worth the time or money.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/6/2008 6:40 PM (GMT -6)   
I had to switch GIs. My first was an absolute nightmare. I could go on for hours about all the horrible advice he gave me and how many times I left his office crying. I don't want to rehash it b/c it will just make me mad! Anyway I found a new GI and I love him. I love his nurse too.

My advice on doctors is this...give them 2 chances. If after the 2nd chance you don't like them for whatever reason move on.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Co-Moderator UC Forum


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 4/6/2008 6:41 PM (GMT -6)   
It doesn't seem like he really wants to play on your team.

If your insurance would cover a 2nd opinion, I'd go check it out. If you don't like doc #2, nothing ventured, nothing gained.

He is pretty much your employee. If you don't like him, and if you can fire him, do it! It seems like most of us have flare issues when we are stressed. This is a stress you just don't need.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/6/2008 6:48 PM (GMT -6)   
My first GI never touched me after the handshake on the first visit. I'm sure if he touched me during a colonoscopy, it was an accident and he was well-gloved. He put me on Asacol, then Colazal, Pred, then added Imuran. Tapered the Pred and when I flared again, put me on Entocort. This was all within the first six months. For the next 8 months, he did nothing. Never mind that I was still going 10-15 times a day. It was like he didn't believe I was as sick as I told him. Probably because I "only" have proctosigmoiditis.

I changed doctors. This one sits down, talks to me, examines my abdomen for tenderness or masses at each visit, and tried every treatment known to man until Remicade was approved and I could start on it. He has been totally supportive and willing to work with me.

And it's a myth that pancolitis is always more difficult to treat. There are two factors in UC: location and severity. I had severe, then moderate to severe p-s. I'd say find another doctor if there's any way you can.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/6/2008 7:02 PM (GMT -6)   
I'm so sorry that you are getting the runaround with this doc. I agree by all means that if you are not happy with your current GI then it's time to find another. I know you're in a small town but if you have to travel to get to a good GI then I say it's worth it. To me, it sounds if this doc has too many patients. I've been with my GI for 11 years now and I wouldn't trade him for anything. He can get a little busy but he always tells me that if I should have any problems, don't hesitate to contact him. He even remembers the personal details like the family, my hobbies etc.
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barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 4/6/2008 8:39 PM (GMT -6)   
Don't walk away from this JERK, RUN! RUN as fast as you can!!!!
 
I had the same moron for 17 years, I didn't realize he was a moron until I started reading this board. Other peoples Dr's actually talked to them! They disscussed the outcome of the colonoscopy! I'm pretty angry that I put up with the idiot for all that time. My new Doc is amazing, he actually TALKS to me and appears to care about my health
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/6/2008 8:43 PM (GMT -6)   
My last GI was SO awesome! I was super bummed to leave him when we moved. My first visit with him was an eye opener. I described my symptoms then - watery D, several times a day, etc. and he said "you shouldn't be happy with this".

Your raport with your GI should be good. A second opinion is never a failure.

You're right to rant!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/6/2008 9:18 PM (GMT -6)   
Wow. Very interesting responses. He usually isn't a "jerk" but he does have too many patients and too much going on probably to be dealing with someone with problems as severe as mine. I have spent seven years with him. Seven pretty unhealthy years. I don't know whether or not having a different GI would have made a difference or not... I will ask my Arthritis doctor who he recommeds for a GI, this Arthritis doctor has been very concerned about getting my UC under control and he is the one who gives me the Humira... in fact, I think he is more concerned than my GI which should have been a reg flag for me since I met this Arthritis guy. I live near Brownsville, Texas if by any chance someone here knows a GI here... Thank you all for listening and replying.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 4/6/2008 9:50 PM (GMT -6)   
Switching GIs helps sososososososo much! I am on my third and he is amazing, and actually listens to me, and asks me what I want after telling me my options instead of just telling me what im going to do. I could go on and on about how much he rules and how horrible the other two were but basically feeling as though you are in good hands and trusting your GI is amazingly important, and i think absolutely key in feeling better!
Winni, 24

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 2x daily, 30 mg pred
supplements:calcium, aloe gel, pro-biotics
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/7/2008 1:27 PM (GMT -6)   
Old Hat, I forgot to respond to what you said. I mentioned Rifaximin to my GI and asked if I could try it while waiting to start my Humira and he said no....
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


sickpuppy
New Member


Date Joined May 2007
Total Posts : 16
   Posted 4/7/2008 2:39 PM (GMT -6)   
I've had nothing but bad luck when it's come to Gastro's as well. The first Dr that diagnosed me with UC was more interested in what I shot on my golf game the day I realized I was sick. In fact when he did a sigmodoscopy, my first scope of any kind he did no prep and no sedation. That was one of the worst experiences of my life. During the whole procedure he was singing and dancing. (he had brought a radio into the room with him) and he was so proud of himself that he completed the procedure within a single song. Later I found out that he had medical conditions of his own and was forced to retire. I was his last patient.

I've had several other gastro since then and with the exception of 1 none of them have really sat down and talked to me about my condition, options, or Meds. Most everything I've learn has been on this site.

I guess what I am saying is, keep looking princess, you'll find someone who cares about your ***.

sorry couldn't resist that one.

yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 4/7/2008 3:42 PM (GMT -6)   
There are good docs out there, and as we have heard here there are jerks as well. If you live in a small town maybe your general practitioner (if he is a good one) can recommend someone more caring and open to listening, if not, keep looking because good ones are out there. good luck.


--------------------------------------------------------------------------------

yuckygut
diagnosed 1998
now off prednisone and colozal
drink 1 Haldi daily

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5169
   Posted 4/7/2008 6:14 PM (GMT -6)   
And, Princesscolon, I FORGOT to tell you that I had to change gastros in the middle of a UC crisis in 1993. It felt like a ball was bouncing back & forth in my colon, I was losing weight because it made me too uncomfortable to eat, etc., etc., plus I had gotten a staph infection while on Cortenemas. I was getting weaker by the day! Luckily, a CCFA-listed gastro I had gone to for a 2nd opinion 3 yrs before that welcomed me back, and gave me the care that my condition required. My colon was just centimeters shy of blockage on the left side! This Angel of Mercy then wrote a letter to my 1st gastro stating the seriousness of my condition & what med it required, not because I intended to go back there, but to let that doctor know that a peer agreed with my complaints! So, yes, it can be colon-saving to change gastros ... / Old Hat

blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 4/7/2008 10:54 PM (GMT -6)   
Hopefully you will get some relief soon. Your Doc sounds very busy.
Find someone you are happy with cause lifes to short. My but has seen many
many Docs over the years.
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day. X6 1/15/08.        
Stopped taking all meds 2/20/08. I have always
flared shortly after stopping meds but I think the bacteria in Kefir
has colinized in my colon and I am doing great.  4/7/08 Colon still
doing great. Kefir(probiotic) helped my colon but not my hemmies.
I still have my colon THANK YOU GOD!!!
Started 1/01/08 PRObiotics
Freindly bacteria:raw milk-kefir made with raw milk natural probiotic.
1/22/08 Started cultured veggies(probiotic)
 
 
 

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