My first GI never touched me after the handshake on the first visit. I'm sure if he touched me during a colonoscopy, it was an accident and he was well-gloved. He put me on Asacol, then Colazal, Pred, then added Imuran. Tapered the Pred and when I flared again, put me on Entocort. This was all within the first six months. For the next 8 months, he did nothing. Never mind that I was still going 10-15 times a day. It was like he didn't believe I was as sick as I told him. Probably because I "only" have proctosigmoiditis.
I changed doctors. This one sits down, talks to me, examines my abdomen for tenderness or masses at each visit, and tried every treatment known to man until Remicade was approved and I could start on it. He has been totally supportive and willing to work with me.
And it's a myth that pancolitis is always more difficult to treat. There are two factors in UC:
location and severity. I had severe, then moderate to severe p-s. I'd say find another doctor if there's any way you can.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.