Hailey has c diff....she is so sick

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ljf01
New Member


Date Joined Feb 2008
Total Posts : 18
   Posted 4/6/2008 9:36 PM (GMT -6)   


<!--136807{-->Hi all,

Hailey was better for about 3 weeks in March after her meds got under control when she got an ear infection and was put on amoxicillin. A few days later, her UC symptoms starting coming back and are now completely back. 5 days ago she was found to have c diff after a stool sample and put on flagyl. Today she is at her worst since the hospital in Feb. In the past week she has lost 7 lbs, is vomitting, and has bloody, watery diarrhea. She keeps asking what she did wrong and why is she being punished. It is horrible.
My question is, what are your experiences with c didd if any? Does anyone have any advice or info I may not yet know?

Thanks for reading....I really appreciate it!

Laura <!--136807}--><!--1207535261.54bd324e-->


Mom to Hailey(age 9)....she was diagnosed with ulcerative colitis mid Feb 2008
Currently on 500mg pentasa 3x/day, 15mg prednisolone 2x/day (currently tapering), iron, and 25mg 6mp 1x/day which was started Mar 6th
As of April 2, taking flagyl and florastor for c-diff
 


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 4/6/2008 10:06 PM (GMT -6)   
I had that about a year ago and it WAS AWFUL! I got it from antibiotics also, but when i got on the anti biotics to treat the C diff it went away fairly quickly.
Make sure she is getting some sort of probiotic or yogurt if she can tolerate milk products.
The only other advice I can offer you is to look into the alternative treatments for cold complications like ear infections. There have been studies coming out lately that indicate antibiotics have little to no effect on treating such infections. I have heard that one of the best cold treatments for kids is a spoonful of honey when they're uncomfortable.
When I feel cold symptoms coming on, I start eating spoons of honey at night, take prescription strength pseudafed and use a neti pot. I used to get sinus infections 3 to 4 times a year, and since I started this regime I've only had 1 in....I think 2 and a half years or so.
I hope she gets better soon!
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/7/2008 7:03 AM (GMT -6)   
I am sorry she is so sick. I have heard sometimes it can take a while for C Diff to go away, I guess it depends on the person/case. I hope she gets better soon. It hurts to hear of children going through this.  I forgot to add a comment about what your daughter said about why is she being punished.  Aww well I hope you talked to her about this not being her fault.  I am wondering if insurance would cover a child therapist so she could talk with them about her feelings and having this disease.  It's not her fault at all.  It must be very confusing and frustrating for her, I mean I am an adult and it is hard, I can't imagine dealing with the stress of this as a child.  I am praying she will feel better soon.


Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08

Post Edited (princesscolon) : 4/7/2008 7:36:59 AM (GMT-6)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/7/2008 7:27 AM (GMT -6)   
Laura, I've been fortunate enough to never have C Diff. I'm just so sorry Hailey is having to go through this. Do get her on some probiotics - I think some of our parents use Culturelle for their children - to replace the C. Diff with good bacteria.

I know it's especially hard to hear her blaming herself. You can only reassure her that she's a good girl and didn't do anything to cause this. Sometimes, for reasons even grown-ups don't understand, bad things happen to good people. Talk to her about good things she's done - being gentle with a younger child, being nice to an animal, bringing you a little gift.

And take care of yourself, too. Sending healing thoughts Hailey's way.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/7/2008 7:40 AM (GMT -6)   
I'm SO sorry to hear this! Poor Hailey. Many hugs for her.

I would also suggest a probiotic.

I hope she recovers quickly.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/7/2008 11:21 AM (GMT -6)   
Do you think she is staying hydrated? That would be my concern w/ vomiting and diarhea.

I hate she is having such a tough time. We never want to see our children struggle. Maybe get her some new books or coloring supplies so she can rest and take it easy. Keep us posted. Sounds like you should call her doctor too.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, April 25, 2018 12:35 PM (GMT -6)
There are a total of 2,955,543 posts in 324,227 threads.
View Active Threads


Who's Online
This forum has 162231 registered members. Please welcome our newest member, Greg R..
283 Guest(s), 16 Registered Member(s) are currently online.  Details
alephnull, JayMot, Jasperilla, Solaris719, Michael_T, echotango, C_G_K, Patulsius, Girlie, BillyBob@388, rose*f, blksteeda, Hardlyrob, InTheShop, FLBeachgal, 1hopeful1