I think I have a cold now too! Darn faulty immune system :(

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dakotagirl
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Date Joined Apr 2006
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   Posted 4/7/2008 8:47 AM (GMT -6)   
Started noticing extra mucous in the nose/throat this weekend.  Just what I need on top of this miserable flare.
 
I also slept for two almost three hour chunks last night.  But I feel even more tired this morning - that really, really bone tired feeling.  I'm guessing anemia - I'll ask to have blood work at my appt this afternoon.
 
Just need to vent to those who KNOW!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
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brian T1
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Date Joined Mar 2008
Total Posts : 17
   Posted 4/7/2008 9:45 AM (GMT -6)   
I find it a bit weird that my immune system isn't as good as it was when I didn't have UC. I thought that UC meant an overactive immune system and that you would have even less problems with the normal pathogens. There is a thoery that UC is not about an overctive immune system but rather an underactive one, which of course blows a hole in the current genetic model of the disease. I wonder.........
Dx mild pancolitis 2006
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bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 4/7/2008 10:45 AM (GMT -6)   
I understand! My flare died down for about a week and now it's back. And I'm a runny nose and sore throat. I'm still not sure if it's seasonal allergies or a cold. Ugh.

Diagnosed August 2007 at age 18
3 Asacol 3x/day
1000 mg Canasa at night


fitmom00
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Date Joined Mar 2008
Total Posts : 113
   Posted 4/7/2008 11:49 AM (GMT -6)   
I've noticed a lot of scratchy throat, etc. as the weather changes back and forth (I'm in the SouthEast where it can be 75 degrees one day and 45 the next - wreaks havoc on my sinuses!!). Maybe it's that?

Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 4/7/2008 12:09 PM (GMT -6)   
Awww Dawn, this is what you DON'T need at the moment! Hang in there girl and I'm glad you're getting your blood drawn at least you will know if it's anemia or not.

Brian, I don't think that we have an under active immune system. Definately over active because many of do well on immune suppressors so if it was underactive then the immune suppressors would be highly dangerous. This is my theory, when we flare our over active confused immune systems spend most of it's time attacking our colon that when we get sick, our defenses are being used elsewhere. I know when I was first diagnosed I was sick allll the time, you name it I got it. It wasn't until I got older and my flares a little more under control that I hardly ever get sick anymore. Now that I'm on 6mp, I get but maybe one cold a year.
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tjf
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   Posted 4/7/2008 12:19 PM (GMT -6)   
That stinks! Glad you are headed to the doctor. Let us know how your appt. goes. You hang in there!!!
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dakotagirl
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Date Joined Apr 2006
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   Posted 4/7/2008 5:45 PM (GMT -6)   
I had a realization. The mucosal barrier in the guts is a main form a defense for the body. Right now, mine is a bloody, ulcerated mess. No wonder I might be catching something. Add to that the fact that I really haven't slept in two weeks and I see the perfect equation for additional illness.

Update from doctor's appt - actually with nurse practitioner: we're playing the "stay at 40 mg of pred for another week and see how you feel" game. I'm not too happy. At least they saw fit to call in a script for some Ambien. We'll see how that goes. I've never taken anything more than Benedryl/Simple Sleep for sleep issues.

She (NP) also suggested calling my PCP about something for anxiety. Just what I want - another bleeping pill. Although with the evil mood swings I've had - it might be worth it.

Now I'm off to research the Ambien (which as a generic is a cheap fix!) to see what I can and can't take with it. Like PAIN MEDS?

Oh - they sent me for blood work too.  NP is concerned about anemia (rightfully so) and said my eyes don't look quite right - like I don't feel well.  I wonder what gave her that idea.  I got a little testy at Quest after waiting 15 minutes for a blood draw.  The tech said something like "having a bad day?"  I wanted to snap!  No, I come here for fun!!!  I just mumble - "I don't feel well" and left it at that.


Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 4/7/2008 6:29 PM (GMT -6)   
I personally love going to the gastro's office for a procedure and after having to fast, D for a day, etc to prep for the scope..the nurse has the nerve to be a witch..I just want to bite her head off! Seriously....if I can be without food for 24 hrs, glued to the toilet all night, nauseous etc..and be pleasant to her..what excuse does she have???? I don't get it!
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 4/7/2008 7:09 PM (GMT -6)   
LOL! Mellie! Isn't that the truth.

My arm is going to BRUISE where she took blood. It really felt like the vessel was bruised. How is it that some techs can insert that needle and I can hardly feel a thing and other times it hurts like a beast!??!!?
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
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Date Joined Feb 2007
Total Posts : 5185
   Posted 4/7/2008 7:40 PM (GMT -6)   
Dakota Girl, at next blood draw insist on holding your arm straight for 5 minutes afterward, while applying pressure. That's what my IBD gastro recommends-- because it prevents blood leakage into the tissues. If that happens in my elbow joint after a blood draw, I can get not only a bruise, but a long-lasting arthritis attack, too! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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