Posted 4/7/2008 2:41 PM (GMT -6)
I started remicade about a month and a half ago. I have my third treatment tomorrow and I am looking forward to it!
After my first infusion i didn't feel and different. The second dose was two weeks later and I felt a whole lot better within 24 hours. I went down about 3 bms a day and a lot less pain. It's been a month since then and I am feeling worse again. From what i've been told it really isn't til after the third dose that most really start to feel anything so i am hopeful. I talked to a woman who had been on remicade for ten years and she said the first year she felt better but it wasn't until after that first year she felt like she didn't have crohns.
Remicade has worked for a lot of people so i have remained postive. But there is also Humira out there potentially as well...
about the immune system...my gi says that its just things like tb that you need to be really worried about. They won't let you get an infusion if you are sick in any way (cold, flu, sore throat, funky looking cut) and the big warning he gave me was to always wear sunscreen (at least 30) becasue it does make you more susceptible to skin cancer. The woman i mentioned earlier said she just washes her hands a lot more now.
I haven't noticed any side effects at all actually. Which after two years of pred is nice.
I can't wait for tomorrow. I'll let you know how fast i see results.