Not all are ready for surgery .... suffering is subjective.
I don't understand why people don't try rectal meds.....and would rather be on pred.
Some still have to be on meds once their colons are removed ...rectal anyway...so, try them now.
I do know that the PSC that I have wouldn't go away if my colon was removed...so it wouldn't be something I'd consider unless I had to exhaust the meds that I could tolerate. I wouldn't take meds that made me feel crappy...so, the colon would be out faster if it came to that point.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!