So I had my first remicade infusion on Tuesday. I had a horrible morning and finally got to the hospital around 1:30ish. The actual infusion wasn't bad but waiting around freaked me out. I don't like hospitals.
I sat in a chair in the corner of the room which made it a little easier because it kind of blocked me off from the rest of the room and what was going on. We had to wait a while for the remicade mixture to be ready. That is the only time I really couldn't stand because I had to just keep waiting. Once everything was ready they gave me tylenol and benedryl. I personally hate benedryl because I get so out of it. It did make me tired but I didn't sleep. The infusion finally started around 2:20ish and I finally was done around 5:20ish. I ended up just watching tv (luckly one of the 8 channels they have was one that I like watching!) The nurses are really great over there and kept coming over to make sure everything was okay and stuff.
It really wasn't too bad. There were a few times that I moved my arm a certain way that the IV got blocked and the thing would beep and have to reset. My mom and I were having fun because we made the thing they put on my finger to measure my heartbeat nuts. We made it go off quite a few times. One of the nurses said that if you hold your breath it will go off and make everyone nuts (I thought about doing that just for amusement).
I came home had dinner and fell asleep pretty early. I slept until 9ish which normally I can never do. So yesterday and today are definitely better days that Tuesday. I won't cough it up to remicade yet but I'm sure that may have helped. I'm hoping this will do the trick. I go back on April 22.
Thank you to everyone that responded. It really helped to be able to ask those question and know what I was going to expect.