UC Spouse-To tell you the truth, I cannot remember exactly if I took myself off the Colazal, or my doctor had me stop them, there were so many drugs he had me try. I think he changed the Asacol to another drug, and I took myself off the Colazal. I would NOT recommend doing that without doctor's approval, however. I remember it was when I experimented with an antifungal diet, trying anything just to get better, and after feeling well, eventually with no symptoms, I kinda weened myself off them (I can hear all the GI's gasping in horror, now). I wasn't due again for a GI appt. for 3 months and didn't want to keep taking them if they didn't make any difference anyway, and I didn't feel like I needed them after all my symptoms disappeared. Even when I told my doctor what I did to get well again, he did not accept that changing my diet had anything to do with my good health. Coincidence, I think he said. He just wanted me to keep taking the drugs and come back and see him in 6 months. I have not been back to him since. I don't think my story is the "norm", so I may not a good one to ask about drugs and their effects.
The only thing that has helped me feel better/well is changing my lifestyle/diet, but I relied on, and absolutely was helped by drugs, like Rowasa, when I was sick. I am not anti-drug, but I didn't want to be on them longterm, or the rest of my life. I'm hoping I'll never need to take drugs like those again. It is a conscious decision for me everyday to watch what goes into my mouth. For me, I know the cause of my UC symptoms. Just wondering...has your husband ever tried a diet change? (antifungal/SCD) -or anything like that?