Question about IV steroids

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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 4/8/2008 9:12 AM (GMT -6)   
When does it come down to getting IV steroids? How long are you in the hospital? Since you are getting high dosage, do you then have to continue on pills and go through the slowly tapering routine? Does it exacerbate the side effects even greater because it is such a high dosage?
 
I don't think it has come down to this but today is not a great day for Bratcat (yesterday was much better). It seems there is one good day and one or two bad days.  All she wants to do is feel well enough to go for her first Remicade infusion. 
 
Thanks for letting me vent. We'll keep you posted.
--Mom of bratcat (16 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 60 mg prednisone
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


Bum Deal
Regular Member


Date Joined Jan 2008
Total Posts : 34
   Posted 4/8/2008 1:17 PM (GMT -6)   

Hi Bennie,

I was brought into hospital for a dose of IV steroids in October last year. I'd been really sick for a while but just struggling through it, made it to my Gastro appointment - my doc took one look at my bloods and told me I needed to come in for a few days. He arranged for me to come in that day.

How long you're in depends on how well you respond to the meds. I was lucky in that the IV steroids kicked in pretty quickly - my gastro doc originally wanted me on IV for 5 days, but I was back on tablets after 3. After the IV (which is a high dose - it's a different conversion from liquid to tablets so I can't remember what I was on) they started me back on 40mg Pred, and yeah, unfortunately you have to start tapering from there. I was in a couple more days for monitoring and tests but I was in and out in 5 or 6 days.

I'm from England so i can only speak from an NHS point of view on the treatment I got, but I imagine it's a similar process wherever you are.

I'm not sure about the side effects, as I've always been pretty lucky with steroids anyway - the only thing the IV infusion did was cause an explosion of spots on my back, but I didn't notice anything else. The IV steroids did, however, make me feel well again very quickly, and if your daughter's that sick, it's definitely worth considering.

Hope this helps, and hope Bratcat is better soon.


DW

Male 30 Years Old.

Diagnosed Pancolitis June 2007

Currently 20mg Prednisolone, 12 tablets Asacol, 50mg Imuran (started Dec 07), 25mg Mercaptopurine (following allergic reaction to Imuran)

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