Since people who don't have UC can become fecally incontinent, it's always a risk with us as well....espcially if the rectum has become somewhat damaged from consistent inflammation. Hence my persistence of rectal meds.
I think your accupuncturist is spreading hopeful stories...not totally a bad thing, but maybe misguided....it can happen as the best case scenario....but reality is what rules, regardless.
I do believe that hormones and UC in women are connected. I had a hysterectomy a few years after diagnosis...still flared but in NO WAY as bad as my initial flare....so that didn't stop them. Life crisis/situations still happened on the way. I am on a small dosage of estrogen....when I stopped it last year, I did flare...with some bleeding which was a first in over 15 years. Shocked the socks off of me.
My flares did improve vastly the first and second year with the use of my meds....so, I can't say the hysterectomy was the major help in dealing with my flares...but it would definitely have helped with the monthly ups and downs...especially since I also had endometriosis.
I believe that keeping the colon as quiet as possible with the least amount of meds as possible is helpful in creating a more hopeful future with the least amount of side effects. Again, best case scenario.
As we age, our stressors actually increase rather than decrease...getting older requires a lot more energy and change FASTER than one can even anticipate. Those changes create a lot of anxiety and grief from loss and change of one's self.
I believe in setting up support for ourselves will lessen those stressors and in turn lessen the UC flare-ups. That could include exercise, family/friend interaction, postive experiences, daily stress reduction through having viable options available, questioning medications where there are other options, massage, accupunctue, etc.....
Remember....we don't know what will happen to us as we age...having UC only can increase the stress rather than lessen it. We never only have UC to deal with...many of us has extraintestinal disease/disorders to deal with. Some fatal.
I do hope that by maintaining the status quo as I age will create a better butt environment. Having lots of options available with hopefully will make it much easier and less bothersome. For me, distress is truly a factor for my body's reactions...has always been. I can only change myself so much...I have to accept that I cannot change everything. I'll definitely have a lot to deal with as I age.
GI docs can't even agree on dealing with UC....don't know how your accupuncturist knows all unless he has it or knows somewhat sho has it.
I would take the opportunity to fill him in on the realities and question his resources before accepting his statements as fact.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
Post Edited (quincy) : 4/9/2008 1:41:18 PM (GMT-6)