Rowasa - am I normal

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my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 4/9/2008 8:51 AM (GMT -6)   
I started Rowasa for the first time last week and I have noticed something that I am unsure of.  Sometimes, usually with the first BM I notice a black substance.  Is this just the color of Rowasa or does this sound unusual?
 
Thanks!
my3suns
 
Diagnosed with UC in September of 2006
My current meds are Rowasa and Lialda
Current state - Flaring


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/9/2008 8:57 AM (GMT -6)   
With Rowasa you can get a rainbow of colors so yes, this is normal.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 4/9/2008 1:53 PM (GMT -6)   
Could be a bit of blood that's sat in there mixed with the Rowasa. Seems normal...

The fact that you held it in is awesome!!! You should stay on them nightly until you have normal bms....could take weeks or even months...

You must taper them....if you know this..great...just a constant reminder to everyone.

Keep us posted as to how it's going.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 4/10/2008 9:04 AM (GMT -6)   
I thought is was probably blood too, but I wasn't sure how Rowasa typically effected people. Yeah, I have no problem holding it all night. I feel some cramping right away, so I just lay down on my side until the cramping subsides and then I am good to go. I only have one week left, but I think I would like to stay on it.

Why do I have to taper off of it? I didn't know that.
my3suns
 
Diagnosed with UC in September of 2006
My current meds are Rowasa and Lialda
Current state - Flaring


fitmom00
Regular Member


Date Joined Mar 2008
Total Posts : 113
   Posted 4/10/2008 10:02 AM (GMT -6)   
I wasn't aware that you had to taper either! Jeesh - I'm seriously considering a new GI doc. By taper do you mean use less each night, or do every other night?? Tks!! (Let me know where to send the consulting fee...) :)
Renee
Diagnosed w/ UC in August 2007
Current status: Flare

4 Lialda/day, Tapering off Prednisone (15mg), Rowasa at night, Wellbutrin XL


quincy
Elite Member


Date Joined May 2003
Total Posts : 30585
   Posted 4/10/2008 12:25 PM (GMT -6)   
Hi..you need lots of refills....they are/should be tapered to help you find a maintenance dosage...or off if you are able to do it. I have tried in the past and realised that maintenance is much better considering life happens while having UC...it's not a separate issue.

Eventually, you will learn to recognise your own body's schedule.
Mine works like this:

Flare symptoms.....start nightly enemas.
Continue until I'm feeling "normal".....continue for another week.
Taper to every second night. Stay on that schedule for at least 2 weeks...if all is normal, stay on for another few times then taper to every 3 nights.

I've done slow tapers, fast tapers, very slow tapers, very fast tapers...etc. My body rules and that's how it works.

The mistake many make is they hate the rectal meds and view them as a nuisance having to use them or having the only goal to get off them.

The mistake many docs make is the same attitude....only worse because they should know better than to have the paients abruptly stop them.

The next mistake patients make is not recognising that early symptoms should be dealt with asap rather than waiting till they get to a point where they have no choice but to use them....but that's a learning process that took me a few years to figure out.

The next mistake that doctors make is to not allow their patients to regulate the rectal meds on their own and to continue to fill the prescriptions based on the fact they actually can help.

The worst mistake patients make is that believe they will be addicted to the rectal meds.

The next worst mistake doctors make is that they believe their patients will be addicted to the rectal meds. 
 
Need and addiction are two different things when quality of life and a chronic disease connect.

Anything is better than pred from my perspective......although it's one of the cheapest meds and has its place.....there are both oral and rectal meds available that patients can have at the ready to deal with their flares rather than feeling desperate and fully dependent on the doctors.

Now.....not all can use the first-line meds....but I truly believe that if patients are started out on pred, that somehow sets up a failure for the other meds....my theory based on observation...no proof. But, there's a high patient failure rate of using meds faithfully.
The alternatives scare the heck out of me....so, I'm doing all I can to be a good patient.

Let me tell you that it's paid off for me BIGTIME....I was 34 when diagnosed and coming on 54 this year. I've used the same meds for that long and my flares have never been as bad as the first one.
I truly cannot be the only patient who does this.

Do I like using them? NO....I still grumble like Mr. Bean....but I'm less tolerant of early flare symptoms.

Sorry for the rectal med rant. Please consider using them to the fullest of their potential. The 19+ years past have gone by very quickly.

q


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 4/10/2008 12:28:34 PM (GMT-6)


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 4/10/2008 12:33 PM (GMT -6)   
I get that "black substance" all the time, since the beginning to this day, 9+ years later.  I think it's the color of the medication turns inside you--no evidence or fact behind this, just came to this conclusion over the years.

Dx Ulcerative Colitis 1999; IBS; GERD; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Prozac, Endocet (as needed), multi vit, probiotic, fish oil, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


fitmom00
Regular Member


Date Joined Mar 2008
Total Posts : 113
   Posted 4/10/2008 6:24 PM (GMT -6)   
Doesn't it say something on the bottle about turning black/brown?? I seem to remember seeing that. I'll check my bottle tonight.
Renee
Diagnosed w/ UC in August 2007
Current status: Flare

4 Lialda/day, Tapering off Prednisone (10mg), Rowasa at night, Wellbutrin XL


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/11/2008 6:00 AM (GMT -6)   
Yes, once you break open the foil bag it lets air in which can turn the Rowasa a brownish color. It's still effective, it just sometimes looks funny.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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