Sulfasalazine Poll

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 4/9/2008 1:22 PM (GMT -6)   
Just curious as to how many people are on Sulfasalazine, and if it is a maintenance dose, what dose are you taking.  It seems to be the only thing that works for me.  It amazes me to see how many people have tried lots of other drugs without any luck but they haven't tried this.
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 10 - 12 year remission (approximately 10 of those years without any meds)
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema every 4th night, will try to spread it out more. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 
In remission since Jan 2008, can't believe it.............


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/9/2008 1:34 PM (GMT -6)   
I'm not on Sulfasalazine but that was one of the first meds I tried. I had a severe allergic reaction to it so of course I had to stop taking it. However, many people's GI's don't typically prescribe Sulfasalazine because of the higher chances of allergic reactions. Glad it's working for you though!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


RMA
Regular Member


Date Joined Aug 2004
Total Posts : 79
   Posted 4/9/2008 2:02 PM (GMT -6)   
Hello
Was on it for 2 1/2 years ...cant beat the cost
worked great ..and then i flare up ..Doc said it fail ''
REMIDCADE 10-02-07
generic colazal 3x3 a day

________________
mercaptopurine 50mg 1 1/2 a day


allopurinol 100 mg
rowasa enema pm generic
multi vitamin
folic acid
fish oil

dx 2004 uc


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/9/2008 2:06 PM (GMT -6)   
I tried this one and quickly found out I was allergic!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 4/9/2008 2:08 PM (GMT -6)   
I'm very relieved that it has worked for me. This was the drug that I was put on when first dx'd with UC. Then I went off of it for several years because I was doing so well. (against Doc's advice). My new GI wanted to put me on Asacol when I started my last big flare. I asked for Sulfasalazine and told her that's what I was on years ago. She told me that they have newer drugs that work better and still wanted me to go on the Asacol. So, I went on the Asacol for almost 2 years with no improvements, and finding them undisolved.........I again asked about the Sulfasalazine and she said "Sure, if you want to try it" I went on it and in 2 months was back in remission, which was a relief because she was ready to start me on 6mp which I was not comfortable with.......You would think that the Doc's would try this medication before the more powerful drugs which have higher risks........If a patient ends up being allergic, no harm, try something else. But I think they should at least give it a try. I think that some patient's don't know about the drug at all. It has truly been my Godsend..........
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 10 - 12 year remission (approximately 10 of those years without any meds)
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema every 4th night, will try to spread it out more. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 
In remission since Jan 2008, can't believe it.............


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/9/2008 2:48 PM (GMT -6)   
It worked fairly well for me when I was first diagnosed. I think I started to get bad headaches on it, but it was so long ago, I really wish I had kept a journal and recommend everyone with UC to make one. I am glad it is helping you.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 4/9/2008 4:10 PM (GMT -6)   
was the first drug for me also but was allergic to it.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 4/9/2008 4:23 PM (GMT -6)   
I was allergic to it too!
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/9/2008 5:37 PM (GMT -6)   
It made me sick as a dog... It was one of the first meds I was put on. Another allergic reaction i suppose. Thought I was just weird.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 4/9/2008 8:24 PM (GMT -6)   
What kind of allergic reactions? I am on pentasa and I think it worsens some of the D.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 3 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 4/10/2008 4:14 AM (GMT -6)   
My son has been on it since 2002 when he was first dx at the age of 10. His dose has been tinkered with as he grows, flares, gets better, etc. Right now he is on a maint. dose of 2 (500mg) 3 times per day. At the max, he has been on 12 pills per day.

My daughter had a slight allergic reaction (fine rash on her arms and legs) when she was put on it in August.
Julie

Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/10/2008 5:04 AM (GMT -6)   
Mitzo - my allergic reaction to sulfa started at painful raised welts along my legs. Now when I'm exposed to it, I get hives sometimes still but intense painful stomach/intestinal cramps along with massive D - oh my lordy are they ever painful!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


BumTum
Regular Member


Date Joined May 2006
Total Posts : 304
   Posted 4/10/2008 8:45 AM (GMT -6)   
I tried it and it worked great for my UC and arthritis. However, it did a number on my head. I had terrible anxiety and depression while on it. As soon as I discontinued its use, I felt much better. Strange.
  • Pancolitis since 5/06 at age 50, IBS since childhood
  • Degenerative Disc Disease/Spinal Stenosis - L4 and L5
  • Prescribed: Asacol, Atenolol, Zoloft, Synthroid, Menest
  • Prescribed: Xanax & Hydrocodone as needed
  • OTC:  Probiotic 15-35, Multi Vitamin, B Complex, Turmeric, Fish Oil, Biotin
 
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 4/10/2008 9:25 AM (GMT -6)   
I had red patches all over my arms and my lips were super puffy
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


malka
Regular Member


Date Joined Apr 2006
Total Posts : 171
   Posted 4/10/2008 9:33 AM (GMT -6)   
I have been on Sulfasalazine since I was first diagnosed over 30 years ago. I take 4 tablets twice a day. I have noticed that taking the entabs (time released coated tablets) work better for me that the regular ones. Fortunately, I have had no allergic reactions. I used to have a maintenance dose of 2 tablets twice a day, but now have noticed that when I go below a daily total of 8 I begin to flare.

M
Diagnosed UC 1975. 
Azulfidine Entabs 500 mg. 4 twice a day
Azathioprine 100 mg per day
Colocort - as needed
Folic acid, vitamins C and D, multivitamin, metamucil, fish oil, turmeric 
 
Hospitalized 1997 - intravenous cyclosporine.


Moo
Regular Member


Date Joined Mar 2008
Total Posts : 20
   Posted 4/10/2008 9:32 PM (GMT -6)   
I am also on a maintenance dose of sulfasalazine (4 per day). I've had UC since 1980 - fortunately with very long remissions and fairly mild flares since the first couple years I was diagnosed.

I started reading here recently after having had three mild flares since the fall due to work-related stress. Usually bumping up my dosage is enough to control a flare.

I don't find that it helps my arthritis all that much, but maybe a higher dosage would. I was interested to read that others have experienced depression and headaches. Curiously, I did develop a sulfites sensitivity several years ago. I have always wondered whether that might be related to this med . . .

Boy, do I have a lot of questions to ask my GE the next time I see him for a colonoscopy!

wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 4/11/2008 1:38 AM (GMT -6)   
Im on the 3000mg diet of sulfasalazine a day (6pills). It works well but gives me migraines once every few months.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4415
   Posted 4/11/2008 4:01 AM (GMT -6)   
Moo,

Sulfasalazine and sulfites are two different substances. While it is possible for there to be a connection (they're both sulfur containing substances), it is more likely something else caused your sulfite sensitivity. Vitamin B12, magnesium, zinc, iron, and molybdenum are nutrients that are needed to offset the sulfite sensitivity (these nutrients help the enzyme that processes sulfites to work better). Taking these nutrients should increase the amount of sulfite you can tolerate before experiencing a reaction - IF the problem is due to a deficiency in the sulfite processing enzyme activity. Vitamin B12 also directly binds to sulfites, rendering them harmless to the body, so if you do get exposed to sulfites accidentally, you can take oral Vitamin B12 to reduce the symptoms of the sulfite reaction. IF you are allergic to sulfites, the nutrients should still help, but won't help as much.
I happen to also be allergic to sulfasalazine and have sulfite sensitivity, but I tend to not do well with anything that contains sulfur (this is not the norm for people with sulfite sensitivity - usually, sulfa-drug allergy and sulfite sensitivity don't occur together).

Take care,


-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.

Post Edited (Razzle) : 4/11/2008 4:04:23 AM (GMT-6)


rdm
Regular Member


Date Joined Apr 2006
Total Posts : 229
   Posted 4/11/2008 8:10 AM (GMT -6)   
I have been on it for over twenty years. very cheap and it works.  Tried it when first diagnosed  and I had head aches, went off it tried again no problems. Currently 3 500 mg. 2 x a day, I self adjust as needed up or down.

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 4/11/2008 8:21 AM (GMT -6)   
I'm also on sulfasalazine, by request. My first GI had me on asacol, which did not help and I believe made my D worse. I'm currently on a maintenance dose of 1 500mg tab, four times a day. When I'm flaring, which isn't very often, I take 2 tabs four times a day.

Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


Moo
Regular Member


Date Joined Mar 2008
Total Posts : 20
   Posted 4/12/2008 11:21 PM (GMT -6)   
Razzle said...
Moo,

Sulfasalazine and sulfites are two different substances. While it is possible for there to be a connection (they're both sulfur containing substances), it is more likely something else caused your sulfite sensitivity. Vitamin B12, magnesium, zinc, iron, and molybdenum are nutrients that are needed to offset the sulfite sensitivity (these nutrients help the enzyme that processes sulfites to work better). Taking these nutrients should increase the amount of sulfite you can tolerate before experiencing a reaction - IF the problem is due to a deficiency in the sulfite processing enzyme activity. Vitamin B12 also directly binds to sulfites, rendering them harmless to the body, so if you do get exposed to sulfites accidentally, you can take oral Vitamin B12 to reduce the symptoms of the sulfite reaction. IF you are allergic to sulfites, the nutrients should still help, but won't help as much.

I happen to also be allergic to sulfasalazine and have sulfite sensitivity, but I tend to not do well with anything that contains sulfur (this is not the norm for people with sulfite sensitivity - usually, sulfa-drug allergy and sulfite sensitivity don't occur together).


Take care,

I'm aware they're not the same substance. But I have often wondered about the sulfur connection.

Coincidentally, I just bought some sublingual B12/folic acid to try to see if it might help boost my energy level. I need to also find a good multi-vitamin with minerals that I can tolerate.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, May 27, 2018 2:11 AM (GMT -6)
There are a total of 2,966,311 posts in 325,326 threads.
View Active Threads


Who's Online
This forum has 162729 registered members. Please welcome our newest member, ian33.
216 Guest(s), 2 Registered Member(s) are currently online.  Details
crestvolante, elmistik