Quincy, After I get completely off the Pred, I will wait a week, then taper the canasa. I will use canasa two nights on then one off. I will do that for a week then go to every other night. Then start to taper more.
My question is:
do I stay on a maintaince dose? What would that be?
Should I get off the canasa completly?
Should I try to get off the maintaince and see what happens?
I DON'T want another flare.
My dr. says it is up to me how I taper off the pred. He gave me some guidelines and said to listen to my body.
BUT he did say to get off the canasa. I don't think he will object to my experimenting...I am going to anyway...It is my body and I need to listen to it.
From what you said that might be a mistake to get off the canasa completly.
He did say that if I start to flare...I could always do another round of Pred....I don't think they (drs.) GET it!!!
I told him NO! I would do the cortifoam before that and any other butt meds.
He said, "the cortifoam didn't work last time"
I said, "I had a SEVERE flare", I don't intend to let it get that bad again before doing my meds. I also told him I had a stash of meds and I intended to use them BEFORE Pred.
He listened and didn't disagree...didn't agree either. He just said to listen to my body and call if I had any problems.
I think he is really leaving it up to me how I want to treat my butt.
If not It is going to be that way anyway. I really do think he will go along with anything I want to try.
DX: 1993: sulfasalazine; 1998: Pancolitis UC. asacal 2 2X daily, cortifoam,; 2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily,
canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
Back on Prednisone 30 mg for 2 weeks then taper to 20 mg then we'll see. Back on Canasa at night.