Someone knew what UC was!!

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Regular Member

Date Joined Nov 2005
Total Posts : 92
   Posted 4/11/2008 12:26 AM (GMT -6)   
I had an interesting thing happen the other day.  I was at the hospital getting blood drawn for a prometheus test (doc wants to up the azathioprine).  The woman drawing the blood looked down at my paperwork and said, "We have the same doctor.  Do you have UC too?"  It was great to sit and chat about how much we like our gi, and how cool is it to not only find someone who know what this is, but has it too?  It made a boring blood draw much more interesting.
I get tired of explaining to people, and just wanted to share with you that others are out there!
Diagnosed Dec. 2003  Ulcerative Colitis 
Currently in flare since 1/08
Sulfasalazine 3g/day             Albuterol 2x/day (Asthma)
Azathioprine 150 mg/day       Advair 500/50 2x/day (Asthma)
Entocort 9mg/day                
Asacol 400mg/day                              
Allergic to:   Rowasa, Demerol, Bactrim

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 4/11/2008 7:06 AM (GMT -6)   
Believe it or not, there are more people out there that have an IBD then we can ever know. Uc is not an external disease so it's easy to hide it. The only person I know that has Uc is my MIL's cousin. And I didn't find that fact out until after I was married to my hubby for 15 years.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Veteran Member

Date Joined Dec 2007
Total Posts : 1028
   Posted 4/11/2008 7:27 AM (GMT -6)   
You can hide it and nobody wants to talk about it because it is "embarrassing" or makes them uncomfortable. Even my family thinks it is all in my head even after I show them the pictures of my bleeding ulcers. My mom thinks I have IBS....still after 10 years and multiple explanations. Some people just don't want to hear about it. It is great to know that there are some people that not only know what it is, but are sympathetic to it. I saw someone with a "got guts" bracelet on the other day and we had a great conversation as well. I think God puts people around when you need them the most to tell you to hang on that there are others out there with the same thing and you are not alone.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female

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