Gypsy, this is exactly why total removal of the colon is the recommended surgical treatment for UC. When only part is removed, the UC comes back in the remaining colon. I can't imagine at this point why your doctors aren't trying other drugs. Azathioprine or 6-MP help a lot of people who don't respond to 5-ASA drugs. Remicade has worked wonders for some of us. Have any of these drugs been tried?
With blood sugars of 500, you definitely should not be on steroids. Frankly, with the situation as you described it, I'm amazed that your doctors haven't recommended removing the remaining colon. This would cure your UC, get you off the steroids and allow you to sort out your other medical issues. You need to have a serious talk with your GI about
treatment plans, and please consider consulting with a good colo-rectal surgeon.
And yes, I'm living proof that Remicade does work.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.