Posted 4/11/2008 6:51 AM (GMT -7)
After years of hearing "the colon has to come out", now my GI is telling me let's try as much as possible to avoid surgery. He said my Upper GI, SBFT xrays did not show Crohn's, but it is possible to have Crohn's in the rectum only which would be impossible to differentiate from UC. And my colon is ulcer free, so he said I should try to hang on to it. He was surprised I am still red from Humira and it was a week ago. He said my body responds strangely to meds. No kidding. So I am continuing the Humira, which so far has been better than Remicade, and I am going to take hydrocortisone enemas to try to help the ulcer heal. Just thought I'd share.
Diagnosed with Left-sided UC in 1995 at age 15,
Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil, Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08