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soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 4/11/2008 9:48 AM (GMT -6)   
Well, I feel ALMOST as bad as I did in Feb when I was in the hospital for a week.  My GI is out of town - on call guy called me in Cipro and Flagyl because I am running fever.  Hope these work.  I have to go out of town this weekend.  I already am kinda dizzy/nauseaus(sp?).  Anyway, if I am not WAY better by monday - I will give my GI doc a call.  I have already moved my next Remi up to next Tues (six weeks instead of eight).
 
Just wanted to vent - I am sooooo sick of this.
 
BTW, I told my husband this morning that he need to help me pack when he got home today.  He said, well, you were off all day yesterday - haven't you finished.  He was just kidding - but really, even he doesn't understand.  I told him if he had to deal with this for just a week- I might get some more sympathy.

Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 4/11/2008 10:53 AM (GMT -6)   
Hard to be empathetic....but I think most husbands/spouses just feel helpless.

I hope you're able to deal with your flare quickly...and that the weekend goes fairly well.

healing thoughts sent your way.
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/11/2008 10:54 AM (GMT -6)   
Hey, vent away. Totally understandable!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 4/11/2008 11:04 AM (GMT -6)   
Okay,going to edit my original response!Your partner's comments have no validation,whether serious or not.It's not funny to live with this and ,therefore,is not something to joke about.It's obvious you were hurt by his words and rightfully so.As I said,that's an edited response,sorry,but I feel very angered by so called "jokes" about our problem.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;Pred,6 week tapered dose,starting at 40mg.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 4/11/2008 11:15 AM (GMT -6)   
I guess mostly, it is my fault because I NEVER talk about my UC. No one around me ever knows that I feel bad - until it is VERY bad. I never complain about anything regarding my UC to my husband. Not that he won't listen, it's just not a good conversation piece.
Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 4/11/2008 11:25 AM (GMT -6)   
But surely he asks?It's not a "conversation piece" for anyone here on this board,but concern is through love,not initiation.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;Pred,6 week tapered dose,starting at 40mg.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 4/11/2008 12:34 PM (GMT -6)   
Not necessarily. At my sickest, my ex would stick his head in the bedroom and say, "Need anything? No? Well, I'll be in here watching TV." My brother and sister-in-law had to take me to the ER because he was at the racetrack. Some men (women, too, I suppose) just aren't capable of much empathy or caregiving.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/11/2008 7:37 PM (GMT -6)   
With this flare I have been much more vocal about what's going on. I had a tendency not to discuss it and to "suffer in silence". I found out this wasn't doing any one good. Last night I tried to put myself in hubby's shoes... I'd want to know how miserable he was, but I also know that there's not much the spouse can do. I know he would take away the pain, etc if he could. Thankfully he is free with the hugs and that is a comfort. He does ask how I'm feeling - especially when the pain is written on my face.

I also know that some people are just not as caring and empathetic. Maybe they can research and find that gene??? However, there are times when I wish I was less so as it creates more anxiety than I need.

I'm sorry you're feeling sick! Vent away - we completely understand :) Plus - it gets some of that emotion out!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 4/12/2008 1:15 AM (GMT -6)   
You're doing yourself and your husband a disservice by not being honest. You or he will eventually grow to be resentful based on what each perceives about the other.

I don't keep secrets about my health ... especially from my husband. I need his support and understanding.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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