Posted 4/11/2008 9:49 PM (GMT -6)
eva lou -
consider how much sleep you are losing if you have to get up to poo 2-3 times a night on a regular basis.

so even tho 8-10 times is not as bad as going 35 times (holy cow!!!!), it is still not a fun way to get thru the day. especially if you are currently on all the meds in your signature... what else can you do to improve? is surgery your last option?

it's just a really personal thing and boils down to if you're happy with the way things are or if you have more quality of life potential with the surgery choice.

when i was coming out of my bad flare, my GI wanted to know if i was waking at night to have any BMs and i think he would have considered this to be a sign that things were still bad for me.

anyway, hope you can come to a decision soon and start feeling better, one way or another. :)
29, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Prayer! asacol, probio, ground psyllium husk, prenatal, folic acid, cal-mag

may you live all the days of your life.

Posted 4/11/2008 9:57 PM (GMT -6)
Remission: 1-2
Flare: 10-20
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade

Posted 4/11/2008 11:03 PM (GMT -6)
I've gone up to 30+/day but thanks to bee propolis, changing diet, fibre supplements, omegas 3-6-9, probiotics all daily I'm down to 5 or less with the exception of when I have my periods, then anything can happen but usually it stays below 10 a day.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 4/11/2008 11:42 PM (GMT -6)
Lately, between 0-5/day...usually around 2 or 3. Before I was put on meds, I was going about 25-30 times/day.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv

Posted 4/12/2008 1:44 AM (GMT -6)
norm for me is 1 - 2 times depending on what/how much I eat.
Flaring will increase with urgency.

I would rarely go beyond 4 or 5 if I'm flaring....haven't had the 20 times a day thing since diagnosis.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 4/12/2008 2:08 AM (GMT -6)
My husband averages 10-12 bms a day.

When flaring approx. 17-20 times a day.

sweetmelody, that's a good question. What counts as a bm? What if it's just gas? Or like you said, what if you go back within 5 sec. to the bathroom?
Posted 4/12/2008 2:22 AM (GMT -6)
I go by, if it feels like you're gonna pass something (which I would at least pass mucus when I had issues with it) then it counts as a BM...I've even had times when I just finished wiping only to have to "go" more, very frustrating.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 4/12/2008 2:39 AM (GMT -6)
Those are definitely frustrating...I agree that anything that is passed and is visible on the tp is a bm.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 4/12/2008 5:48 AM (GMT -6)

Then by that logic, I'm going about 15-20 times a day! I hate those faux bm's, nothing but gas & mucous... that's why I've been wearing a pad 24/7 for the last few months. And with a fistula, the mucous just leaks out all the time. nice, huh! I count the times I get up off the toilet, wipe, then sit right back down as "one" too.... I don't mind the frequency so much as the urgency. But yes, getting up 3 times a night every night does take it's toll! Last night was particularly bad, must've been up 6 times, then the cat woke me up early anyway! Re. my 2nd thoughts on surgery- I'll be having them right up to the second they put me under, no doubt. During a "bad" flare, it's been up to 25 times a day, and the lowest it's ever been is probably around 3 a day, right in the beginning of my Remicade use. I believe my #'s will go up in the next month or so, since today I started seeing blood again & I have no infusions scheduled. Whatever.


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
surgery scheduled 5/7/08- perm ileo
 
 
 

Posted 4/12/2008 7:47 AM (GMT -6)
The past 5 or 6 months now, it's 1-3 times per day and I *think* I am in remission. My BM aren't what they were before my diagnosis but maybe that's then and this is now and I just have a new normal for me. When I had my bad flare last year, I didn't count but I know it was 15+ times per day at least.
Sandra, age 34
Diagnosed December 2006 with UC (proctitis)

Asacol (800mg x 2)
Salofalk suppositories as needed
Multivitamin
Vitamins E, C, B complex, calcium & magnesium
Omega 3/6 supplements (500mg x 2)
Probiotics

Posted 4/12/2008 8:59 AM (GMT -6)
In remission around 1-3 a day. In flare, around 30
Abatacept Trial since Feb 2008 (Induction Period)
Back on Pred - 3mg - Steroid Dependent :-(
Azathioprine 175mg
Colazide x3
Actonel 35mg, EPA Fish Oils
Predfoam Enema - Had to stop as not allowed during trial
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 

Posted 4/12/2008 9:45 AM (GMT -6)
In remission, 2-3 times. In flares, 5-10 times.
 

Posted 4/12/2008 11:58 AM (GMT -6)
Flare can be 25+

remission 2-3 (i haven't had just one as long as i can remember)

now 3-6
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 5mg pred, 150mg Imuran
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.

Posted 4/12/2008 12:35 PM (GMT -6)
Eva Lou said...

Then by that logic, I'm going about 15-20 times a day! I hate those faux bm's, nothing but gas & mucous... that's why I've been wearing a pad 24/7 for the last few months. And with a fistula, the mucous just leaks out all the time. nice, huh! I count the times I get up off the toilet, wipe, then sit right back down as "one" too.... I don't mind the frequency so much as the urgency. But yes, getting up 3 times a night every night does take it's toll! Last night was particularly bad, must've been up 6 times, then the cat woke me up early anyway! Re. my 2nd thoughts on surgery- I'll be having them right up to the second they put me under, no doubt. During a "bad" flare, it's been up to 25 times a day, and the lowest it's ever been is probably around 3 a day, right in the beginning of my Remicade use. I believe my #'s will go up in the next month or so, since today I started seeing blood again & I have no infusions scheduled. Whatever.

 
How did you manage to get a fistula with having UC?  Fistulas are prone to CD and almost never present with UC because the inflammation in UC remains surfacable unlike with CD where the inflammation can go through the many (all) layers of the intestinal tract leading to a fistula.
 
:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 4/12/2008 2:18 PM (GMT -6)

1 to 2 times per day, on average with sometimes 0 in a day or 3.  

usually when I get up 6:30 am and maybe one later in the day around 6pm.

My last flare was 25+ times per day.


Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 20mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your protiens!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.

Forum Information

Currently it is Thursday, October 18, 2018 8:51 AM (GMT -6)
There are a total of 3,012,821 posts in 329,975 threads.
View Active Topics

Who's Online

This forum has 161898 registered members. Please welcome our newest member, rezhajois.
217 Guest(s), 11 Registered Member(s) are currently online.  Details
imagardener2, HeartsinPain , mattamx , PDL17 , Dimitri71 , MG0351 , rustypliers , Gear , Bosco , dmanIndy , three 5's and a jack