So am I flaring, or just sick?

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jc_ferrero
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 4/13/2008 3:52 AM (GMT -6)   
Migraine, fever, shivering, fatigue, severe stomach cramps, diarrhea without blood as of yet, have not vomited, although I've came pretty close. redface

Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 4/13/2008 5:59 AM (GMT -6)   
What is the extent of your Uc? If you have Pancolitis, it sounds like it can be a flare however it doesn't sound nice and you should contact a doctor if you can. How high is the fever? If it's high then you are probably sick - sort of sounds like the flu.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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jc_ferrero
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 4/13/2008 6:30 AM (GMT -6)   
Red_34 said...
What is the extent of your Uc? If you have Pancolitis, it sounds like it can be a flare however it doesn't sound nice and you should contact a doctor if you can. How high is the fever? If it's high then you are probably sick - sort of sounds like the flu.


My GI never gave me a direct diagnosis, he just said Ulcerative Colitis and that it was "quite bad". However, my symptoms really aren't much when compared to some people here, who I feel terrible for. I have been in remission for a long time and this is the first sign of those dreaded cramps I have experienced, or at least ongoingly.

The fever has settled down since yesterday and that side of things is improving, the cramping is just quite painful right now.

I'm in a tricky situation and I don't feel comfortable going back on Pred.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/13/2008 6:56 AM (GMT -6)   
Why would you have to go back on Pred? Are you unable to take the conventional 5-ASA meds? Even if you have to go on a steroid, could you maybe do steroids in enema form?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jc_ferrero
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 4/13/2008 7:40 AM (GMT -6)   
Red_34 said...
Why would you have to go back on Pred? Are you unable to take the conventional 5-ASA meds? Even if you have to go on a steroid, could you maybe do steroids in enema form?


I'm on 9 x Colazal which has been management during my remission. I've never tried enemas, I'm a bit scared of them to be honest. eyes My doctor is a very conventional prednisone only kind of person, but I should talk to him about alternative treatments next appointment.

Just out of curiosity; how effective are the infusion treatments like Remicade and Humira?

Thanks a lot for your help by the way

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/13/2008 8:11 AM (GMT -6)   
Remicade seems to be very effective for some of us, not at all for others. Humira is just starting to be used in large numbers, but I think it is the same.

How long were you in remission? If you had a significant period without symptoms, it could be worth a short course of Prednisone to regain the remission, then taper off. Also remember that a lot of people are helped greatly by immunosuppressants like Azathioprine or 6-MP. So you have a number of options to consider with your doctor.

Please take the time to get more information from the GI while you're there. Knowing how much of your colon is affected by the UC can help you with making decisions about treatment.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


#1Chloe
Regular Member


Date Joined Nov 2007
Total Posts : 20
   Posted 4/13/2008 1:47 PM (GMT -6)   
Is there a possibility it could be c-diff?. The colitis without blood was different from the colitis due to UC for my 63 year old husband. He was admitted to hospital last week for what was thought was failed drugs for UC and voila c-diff in stool samples!!........... Was discharged from hospital Monday and on the antibiotics for c-diff. This is just a thought...........
Good luck!
Chloe.........
Imuran 200 mg each day

Husband diagnosed Ulcerative Colitis Nov 2 07


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/13/2008 4:41 PM (GMT -6)   
I would see how you're feeling in 24 hours before thinking it's a flare. I had a wicked flu bug in Dec '06 that knocked me on my bum - literally. The doc did request stool samples - I had called him ASAP as I had only been on Imuran about three weeks then.

Let us know how you're feeling.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D
 
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jc_ferrero
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 4/14/2008 4:58 PM (GMT -6)   
Thanks guys.

Just an update- the cramps and diarrhea are pretty much the same, if not worse. I no longer have a fever or migraine, but my stool is sometimes yellow and frothy, always extremely loose (sorry for the graphic). I do believe there was a bit of blood in one movement.

Because I react well to pred but I really can't take it anymore, I've been taking 5mg over the past few days. Not sure if it will do much, but it's worth a try. I've been ill since Friday night now.

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/14/2008 5:05 PM (GMT -6)   
I'm so sorry this is still making you miserable!

Did you call him/her? What did your doc say?

Definitely sounds like a flare. I was SO hoping it was temporary. Sorry!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


jc_ferrero
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 4/14/2008 5:15 PM (GMT -6)   
This will be my first flare since the initial diagnosis in December 2006. I've had a pretty long remission so I can't complain!

I haven't called him yet, but I'll organize an appointment soon.

The reason I don't want to try anything over 5mg of Pred is because I break out in severe cystic acne very quickly. I've just been on accutane for 8 months, and although it did clear me up, my skin tone was purplish the whole time I was on the drug (and 2 months afterwards) and I don't think I can go through that whole cycle again.

NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 4/14/2008 5:38 PM (GMT -6)   
Are you sure it isn't some stomach bug? It has been going around the Seattle area pretty hard, but nothing in the news. I wouldn't be surprised if it cropped it's ugly head elsewhere. I'd still check with the doc.

There are other meds besides enemas. There are suppositories. I thought I would HATE suppositories. I didn't try my first one (sounds like I am doing something illegal) until I was 47. I was prescribed canasa suppositories. But once I tried them....well, they are a GODSEND.

You can ask around. If your community has a nurse help line, you can also call them and get some input.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30608
   Posted 4/15/2008 8:40 AM (GMT -6)   
Hi....call the doctor asap and possibly start on 5ASA meds if you can take them. Pred doesn't have to be a first choice...or should ever be a first choice and remember you don't have to take it.

Try the Asacol and rectal meds....please...at least you can find maintenance dosage.

How many bms are you having daily? Are you having urgency and rectal discomfort?

Are you on any probiotics?


quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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