Julee....we've all been there, and it's definitely frustrating and sometimes leaves us with the feeling of hopelessness.
If cortifoam helps you....then you should consider to find a maintenance level and stay on it. It's not a huge amount of a dosage compared to the liquid form...it's easy to retain at least.
Your #3 complaint should be tweaked to say I don't like to be on the cortifoam, but it helps keep me in a state where I like to be.
Find your maintenance level and remain there.
Curious if you're now near your period.....for women, their colons will be a tad more precarious at that time of month....another reason to coordinate your maintenance meds to lessen your symptoms.
I had lots of ups and downs the first two years....finally realising I'll be a med-lifer. Humbling... but a necessity.
Don't punish yourself, but it's OK to feel sorry for yourself for short time.....then do what you need to do to get back feeling better.
It all takes time. My doc always said "patience"....yeah right....but unfortunately, it's true.
Can you not use any
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!