My daughter is 14 and just diagnosed in Jan. We may follow a path or two the same way. She inserted the enemas herself after the first one that I helped her with. She had a hard time holding them in as she was flaring. She was not one of the Rowasa success stories, unfortunately. It brought on intense symptoms, and after two different trials, we gave them up. Many, many are helped greatly by these, for left sided UC, but the longer she kept them in, the more bm's she had. I have heard that the generic version is more difficult...tough to get all the air and medicine out, as the bottle is less flexible. Perhaps that didn't help.
We just finished our second visit to the hospital, and are making nice progress. Back at school, eating low residue foods, stable weight and down to 30 mg of Prednizone( along with 6 asacol,6mp, and a host of supplements.) It's a journey. Stay on top of it, get a good doc with LOTS of exposure to this, and get copies of everything. It can turn on a dime, and you need to be prepared. She has shared her disease with close friends, and it was a good decision. Her appearance changed on the steroids, and kids are so superficial...it helped to have her good girlfriends tell the general population that her change was due to medicine, not stuffing her face.
Good luck, I am around if i can help.
Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Rowasa, Asacol, Prednizone 50mg, major flare, Hosp. @U of C, Comers. IV steroid, no food, then low residue, home.
Now, began mp6, beginning taper of Pred, now 45mg, horrible acne, moon face, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.