Abatacept to Golimumab pt 2

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Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 4/16/2008 12:48 AM (GMT -7)   
Well, its all signed, sealed and under way.

Today was the pre-screen for this new trial. Bloods, stool, chest x-ray and TB scratch test.

darn this TB scratch is ITCHY!!!

Doc also thinks I may have c-diff as I have been flaring bad for the past fortnight, i was on anti-biotics for 2 months straight and when i go to the toilet, it smells like rotten eggs... My poor flat mate!

So yes. Flexi-sig is next Tuesday and if all goes to plan, in a fortnight, I will receive my first dose of the drug.

There is a 4 in 5 chance of getting the drug. 1 in 5 chance of placebo... Lets hope I have more luck with this stuff then with the previous trial!
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male, Australia. Diagnosed at 16yo;
    - 2xColazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1xAbatacept 10mg/kg per month;
    - 1xteaspoon of Metamucil 3 times a day;
    - 1xBIOCeuticals UltraBiotic 45 per day + 1xSB FlorActiv per day.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/16/2008 4:59 AM (GMT -7)   
Good luck! Keep us posted! Can you continue w/ the study if you have c-diff?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 4/18/2008 1:01 AM (GMT -7)   
Just went in for my TB screen pt 2 of the scratch test. Seems I don't have TB, but the result was enough that it may exclude me from the trial *cries*

Don't find out until at least next Tuesday afternoon how it all went :-/

STRESS MUCH
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male, Australia. Diagnosed at 16yo;
    - 2xColazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1xAbatacept 10mg/kg per month;
    - 1xteaspoon of Metamucil 3 times a day;
    - 1xBIOCeuticals UltraBiotic 45 per day + 1xSB FlorActiv per day.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/18/2008 1:16 AM (GMT -7)   
Oh, Severin, I'm sorry. I'm keeping my fingers crossed for Tuesday.

What options do you have if you don't get in?

Ivy.
Co-Moderator Crohn's Forum.


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 4/18/2008 6:17 PM (GMT -7)   
Spoke to my GI. He said that if I don't get into this trial they will be putting me on Infleximab (Remicade).

So will have to wait and see. Hope I do get into this trial cuz the feedback from other GIs seems to be that they are having extremely positive results.

I will just have to wait and see.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male, Australia. Diagnosed at 16yo;
    - 2xColazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1xteaspoon of Metamucil 3 times a day;
    - 1xBIOCeuticals UltraBiotic 45 per day + 1xSB FlorActiv per day.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/19/2008 5:40 AM (GMT -7)   
wait, you haven't tried Remicade yet?!?!?! Why not?!?!?! I just assumed you had already been on it & became non-responsive??? Huh... Is there a reason you're choosing the trials over an already approved drug? Wow, that totally surprises me. That you haven't tried Remicade yet. Or have you?

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 4/28/2008 2:47 AM (GMT -7)   
Well, I received "THE" phone call today informing me that I had been accepted into the Golimumab trial!

First infusion is on Thursday, and then its monthly injections using a Humira type pen from what I understand.

Such a huge weight off my shoulders. Hope it works!

Keep you posted...

ps - Eva Lou: You can't actually get into the Golimumab trial if you have ever had Remicade, thats part of the reason I was selected to apply for this trial.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - 2xColazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1xteaspoon of Metamucil 3 times a day;
    - 1xBIOCeuticals UltraBiotic 45 per day + 1xSB FlorActiv per day.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/28/2008 5:07 AM (GMT -7)   
Congrats! Please keep us updated on how it is going.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/28/2008 7:33 AM (GMT -7)   
Good luck! I'll cross my fingers for you- you could use something that really works, for a change! As always, keep us posted.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 

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