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mmigora
New Member


Date Joined Mar 2006
Total Posts : 17
   Posted 4/16/2008 8:14 AM (GMT -7)   
My Dr. wants to start me on Remicade since I am not responding to Prednisone anymore.  The medication guide I read says that some adults have developed a rare form of cancer from Remicade, anyone have any info on this?  What should I expect from this medicine?  Do you feel any change after first infusion?  Are there any bad side effects? Any information would be helpful. Thanks.
Ulcerative Colitis, Pancolitis diagnosed 1995
 
Current meds: Asacol 9 tabs daily, Prednisone 15mg daily
 
 
 
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 4/16/2008 8:40 AM (GMT -7)   
I know there are a lot of people on here that are on Remicade but for me, it's not a drug I want to take. My GI from the Cleveland Clinic put it to me like this...this disease won't kill you so why would you want to take a drug that can kill you?" I know the cancer risk with Remicade is rare but I'm way too scared to risk it.

Have you tried immunosuppressants, what about steroid enemas? All traditional UC meds make me worse (like Asacol, Colozal, Rowasa, etc). The doctors have a hard time believing that they make me worse (because they don't like to listen!). If you aren't comfortable with Remicade, there are other options. If your doctor keeps bringing it up you might need to switch doctors.

**Please edit your signature to 10 lines or less.**

Post Edited By Moderator (tjf) : 4/16/2008 12:43:37 PM (GMT-6)


Mike_in_Georgia
Regular Member


Date Joined Feb 2007
Total Posts : 159
   Posted 4/16/2008 8:41 AM (GMT -7)   
After reading the possible side effects of remicade and other postings, I cancelled the first appointment that my doctor set up for me about 3 years ago. Since then I got into a flare from "hell" and could not get back into remission. After about 9 months, I resigned myself to surgery and had it scheduled. But I got so sick that I decided to try remicade. I have been on remicade for over a year now and I am about as normal as I get. It took 3 treatments for me to receive full remission, but I noticed a big improvement after the 2nd treatment which was administered 3 weeks after my 1st treatment. I'm still scared of all of the possible side effects, but I guess I'll be on it until something better comes along.
Mike
 
meds: UC diagnosed 1990; Remicade - 1 year, Canasa suppositories as needed, vitamins and other supplements
 
Severe reaction to 6MP; Severe nausea and steady unwanted weight loss on Asacol


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/16/2008 9:08 AM (GMT -7)   
there is nothing that is totally 'safe', 5ASA's such as sulfasalazine and asacol gave me Kidney Disease, which I am battling and for the Kidney disease they gave me prednisone, which is making me pre-diabetic and of course a whole other set of issues to worry about. Even surgery has it's own complications.

my suggesstion, research, research, research and then make the best decision for you.

I hate to say this coz I don't want to jinx myself but after I have kids if I ever get real sick again and can't get better I think I might just say, "see ya" to my colon and, "hello j-pouch". But I have not researched surgery yet, so I don't know exactly what I would do.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 20mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your protiens!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/16/2008 2:08 PM (GMT -7)   
Recent review has shown that patients who developed those rare cancers were those who were on Remicade and immunosuppressants (Imuran, 6-MP) together. My doc has taken his Remicade patients off the immunosuppressants. Basically, he doesn't start Remi until the immunosuppressants have failed, so any minimal benefit from them isn't going to be missed much.


Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/16/2008 2:14 PM (GMT -7)   
also, the overwhelming majority those patients who developed lymphoma were in the male pediatric population. I dunno... everythings got it's risks.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 

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