My husband has gone through 3 GI's, thinking of looking for the fourth.
1st-was a general GI and didn't have much experience with UC, so referred my husband to a second GI.
2nd-He was waaay too busy. My husband had to repeat his case to him each time he saw him. He had no time to even listen to my husband and wanted to start him on Remicade right away. That doc. was into research too...so he had other agendas.
3rd(¤t doc.)-He has tried putting my husband on xifaxan, increasing colazal (12 pills a day), and now Humira. Xifaxan seems to reduce the number of trips to the bathroom by a few (1-3)and only for a few days. Has anybody else taken Xifaxan?
It seems quite a few people on Humira are taking predisone simultaneously. My husband is only on Humira and colazal. We know predisone has bad long term affects. He has been on predisone previously for two months. Perhaps he needs a "double punch" as he recently said. Would being on predisone for two - three months with Humira be too risky? I know one said that four months is too long, so we'll make sure it's less than that. Predisone is a bad drug, but isn't losing weight (35lbs. so far) at a steady rate and missing out on valuable nutrients too?
Btw, this doc. believes diet has nothing to do with colitis. So, on our own we went to a nutritionist, but she was of no help. SHe just said he should have smaller and more frequent meals. He has been currently taking the probiotic ALign for 2 weeks, no results so far.
I was afraid we have reached the point where we are running out of options...perhaps that is why we were looking for a new doctor, for new hope/solution. Honestly, I feel there has to be something else out there that can help him before surgery can. This site has really opened up my eyes to the fact that there is hope. THank you all for that!