Old Hat-You are so sweet for saying that. THanks! But, I hardly think I am...I have my ups and downs too. OldHat, that's exactly why we wanted another opinion. My husband has never been to an IBD specialist. Perhaps they have more resources. How would one know if they have Chron's. Wuuld not responding to medication be an indication? Thanks for directing me to Salix. That's a very interesting site. Are you referring to Volume 1 of the newsletters? I am not sure if I was in the right place.
suebear-If you don't mind me asking, I noticed in your signature, you wrote you lost all of your B12 stores. What does that mean? You know, I heard that a person got symptom free from getting Vitamin B injections. Have you ever heard of this?
GISGuy31-How does one check for Chron's? My husband has already had a colonoscopy and they only mentioned UC. Does that mean it's a strong case? I guess my husband is not there yet, at the point where he feels he is so miserable that he needs surgery. But, I think he is getting there. Unfortunately, I think I am like your family, very hesitant for him to get it. It just seems so painful and life altering, but then again so is dealing with UC.
Husband diagnosed with pancolitis in May 2007 at the age of 31
Predisone 40 mg for two months-every time weaned off, symptoms came back, Mesalamine(substitute for Rowesa)enema for 21 days-didn't see results in 14 days so stopped taking it, symptoms seemed to get slightly worse.
Xifaxan-on and off
Current meds. : Humira, Colazal 12/day, Probiotic-Align, Fish Oil
Has never gone into remission