!!!Meds question - need advise FAST

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NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 4/17/2008 11:16 AM (GMT -6)   
I have been on Lialda for about 6 weeks and I am feeling sorta flarey. I want to change to another med, but I'm not sure which one I should try next.

I was on sulfasalzine (3 pills 2 times a day) and that seemed to work, but I got headaches.

My worst symptom is the urgency. I have no blood and very little mucous. I have horrible gas. I didn't experience the gas with the sulfasalazine. I am using canasa suppositories at night, but I'm also thinking about asking for some rowasa enemas. Please let me know which one works better for you.

I would prefer something that would release as far down in the colon as possible.

I was diagnosed with pancolitis 2 years ago. The meds kicked me into remission right away. I have flare-ish symptoms from time to time, but no blood and no mucous.

Any advise would be greatly appreciated. The doc is going to call me back after 1:00 pm (pacific time). So I need advise pronto.
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/17/2008 11:18 AM (GMT -6)   
Have you tried Colazal or Asacol? How about rectal meds?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4061
   Posted 4/17/2008 11:28 AM (GMT -6)   
The Rowasa enemas are worth a shot. The Canasa probably reach the lowest part of the rectum the best, but they don't contain as much medication as the enemas. You can increase the Canasa to 2 a day if you're on the 1,000 mg suppositories. Have you tried that? Asacol or Colazal (sp?) might help you, too. I think Colazal has helped a lot of people here, and I believe it may release medication lower in the colon more effectively than Asacol, but I'm not sure about that.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 4/17/2008 2:34 PM (GMT -6)   
I had a severe allergic reaction to Colazal.

my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 4/17/2008 2:37 PM (GMT -6)   
I have taken both rowasa and canasa and I would say that canasa gave me the most trouble. I was always gassy and continued to have the urgency. Canasa helped stop the bleeding and mucus for me until the colitis spread thru the rest of my colon. Try the rowasa - it is a dream drug for me. I have been taking it for two weeks and I can feel an improvement. I also take Lialda and I have not had any trouble with it at all, at least not that I can tell. My flare is not yet gone, but I feel better.
my3suns
 
Diagnosed with UC in September of 2006
My current meds are Rowasa and Lialda
Current state - Flaring


quincy
Elite Member


Date Joined May 2003
Total Posts : 30504
   Posted 4/17/2008 11:13 PM (GMT -6)   
There are steroid rectal meds.....liquid, foam and suppositories. Give them a try.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


MissMindy
Regular Member


Date Joined Nov 2007
Total Posts : 27
   Posted 4/18/2008 1:08 AM (GMT -6)   
I had been taking Lialida for about 5 months before I decided to not take it any more. I didn't so much feel like I was going to flare. I was just having really bad migranes and hair loss and sick to my stomach. But you may just be having different side effects. Have you talked with your GI yet about what is going on? I was taking Canasa also but that just seemed to upset my colitis even more. That might be the problem for you. Not so much the Lialida as the Canasa.
Best of luck to you!
------------------------------------------------------------------------------------
A 20 year old girl that is newly diagnosed
Yet she still is determined to go out and live her life to the fullest...
Diagnosed 10/30/2007
Currently taking:
Lilalda -NO MORE!
Biotin -NO MORE!
Solotron -NO MORE!
Caltrate -NO MORE!
Prednisone -NO MORE! :)

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