blood results

hi, my daughter has her blood tested regularly, and the results are getting better each time, considering all the stuff she takes
we are happy. the problem that stays consistent is low b 12. the dr keeps suggesting red meat, she must not be listening or she would have heard us say that red meat does not
agree with our daughter. it caused her a lot of pain before the meds kicked in,and she doesn't want to eat it evenif the meds mask the pain, i don't blame her, it is just hard on her colon and just because she is feeling better, we don't want things that we know irritated her before all the meds-anyway does anone know what might be a good way to get the B12 i know supplements seem obvious, but they can be hard on the intestines .

thanks

Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day

The primary food sources of B12 are meat, eggs and dairy. If she isn't able to eat any of those, a supplement may be your next step. If she can't tolerate that, B12 can be given as a monthly injection.

Judy

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

~~Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine~~

Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.

Co-Moderator UC Forum

The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.

princesscolon

Veteran Member

Joined : Apr 2006

Posts : 733

Posted 4/17/2008 6:45 PM (GMT -7)

I have taken B12 in a liquid form available at Walmart. I didn't notice any digestive changes on it.

Diagnosed with Left-sided UC in 1995 at age 15, ~~Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade~~, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil, Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08

julee70

Regular Member

Joined : Oct 2007

Posts : 486

Posted 4/17/2008 8:44 PM (GMT -7)

Some people are just naturally low on B12. I don't know how serious it is. But if it's borderline, maybe she can just coast for a while like this. She has enough to deal with, right?

Maybe liquid vitamins? I don't know if the dose is anywhere near high enough, though. Does anyone know?

I hope that your daughter is feeling better these days. I know that it was a really difficult winter for her.

-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.

MMMNAVY

Veteran Member

Joined : Jul 2006

Posts : 6927

Posted 4/17/2008 9:19 PM (GMT -7)

Try the shot, chronic low b-12 can cause neuro damage...

^{Crohn's Co-moderator}_{We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)}_{Praise in public, chew in private.
Make sure your suffering has meaning....}

_{____________________________________}

_{All suggestions/options/opinions are caveated with please consult with your local health care provider...}

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5198

Posted 4/18/2008 9:10 AM (GMT -7)

PLEASE-- that's great news if your daughter is finally seeing progress against her UC flare. I only eat red meat once or twice a month + very few eggs, but I do consume lactose-free dairy, yogurt, & a couple types of low-salt cheese regularly. That plus a daily multivitamin takes care of my B-12. Your daughter might benefit from a change in daily multivitamin; some have better potency than others. (I myself felt good effects from switching to Centrum Silver last fall.) There is also Forvia, a vitamin complex especially formulated for IBD patients. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 4/18/2008 9:14 AM (GMT -7)

I don't do well w/ multi-vitamins but my last blood work showed I was low on a couple of things too. Anyway I take a kid's vitamin! If you read the back some children's vitamins have an adult dosage. I take 2 gummy Immune boast Flintstone vitamins. They are the first ones I've ever taken that don't give me a tummy ache.

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

https://www.healingwell.com/donate
Co-Moderator UC Forum

dakotagirl

Veteran Member

Joined : Apr 2006

Posts : 3402

Posted 4/18/2008 9:47 AM (GMT -7)

If you are near a Trader Joe's, they have a sub-lingual B-12 supplement in cherry flavor with no extra icky sugars or other stuff. They're smaller than a mini M&M - so super easy to take.

Just another option for you :)

Pan-colitis and GERD diagnosed May 2003

Osteopenia diagnosed Feb 2006

Status: Flaring :(

40mg pred, Asacol 12 per day, Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D

Co-Mod for the UC forum: Keep HealingWell running smoothly: www.healingwell.com/donate

jayce

Regular Member

Joined : Nov 2007

Posts : 403

Posted 4/21/2008 4:38 AM (GMT -7)

thank you all for your answers.

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