One month post diagnosis

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RichardUK
New Member


Date Joined Mar 2008
Total Posts : 3
   Posted 4/18/2008 4:10 AM (GMT -7)   
 
Hello all, I first posted around a month ago having just been given an intermediate diagnosis,
I have been on treatment for 4 weeks now.
 
I have been taking 2g of Pentasa orally twice a day and 1g of Asacol rectally once a day (sometimes skipped this early on because of being so sore).
 
My BM's are down from double figures to 4-5 times a day. Blood and mucous almost gone and stools are starting to firm up although still far from normal. Abdo pains less frequent and much less severe.
 
Hellishly tired all the time, I find I need 11 hours sleep just to even function at a basic level at work.
 
Had 2 complications around my rear end, the first was an abscess which seems to have cleared up after 2 weeks of metranidazole ( Not before it burst on me when I sat on the toilet one day though - boy did that hurt !)  The second, which I am none too pleased about is an anal fissure which wasnt there prior to my sygmoidoscopy and is likely to have been caused by the procedure. It aches like mad most of the time and is really sore after BM's.
 
I had my first monthly appointment yesterday and because of my progress I have avoided steroids for now but I have been put on the list for colonoscopy in 5 weeks time.
 
I really dont want to go through this proceedure, I am very concerned that if my fissure has healed by then it will open it again or make it worse if its still present.
 
If my symtoms continue to improve I am considering taking myself of the operating list when the time comes.
 
Well thats where I am now, any comments are welcomed and appreciated.
 
Thanks for reading.
 
 
 

bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 4/18/2008 4:41 AM (GMT -7)   
Hi, I am a new member too, I too was diagnosed with UC a month ago.  I just wanted to say good luck and I am so pleased to have found this website, so many people can help that have been through it.  We obviously can't have our doctors answer every little question.  Take Care, Bellski

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/18/2008 5:08 AM (GMT -7)   
Hi! I believe fissures are more common in individuals that have Chrons. It sounds like you don't have a definite diagnosis yet??? Is your GI aware of the fissure? I can't imagine they would perform a colonoscopy if there was any chance they could make your condition worse. What does he/she say? Glad you are feeling better!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 4/18/2008 5:33 AM (GMT -7)   
Tell your GI your concerns. Even when I go in for my colonoscopy, I tell him before he knocks me out that I am really sore or my hemmis hurt.....he uses the pediatric scope on my and some numbing cream and a ton of lubricant....never have any problem. Good luck and I do hope you feel better before then so you don't need the procedure. Good luck
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


quincy
Elite Member


Date Joined May 2003
Total Posts : 30090
   Posted 4/18/2008 8:21 AM (GMT -7)   
Tabitha....you're probably meaning fistulas? not fissures.




RichardUK....great to hear you're having much improvement. It's a slow process. Anyone can get fissures...they're a tear in the anal folds and usually happen from wiping often or from multiple bms.
The tissue around the anus gets mighty irritated from multiple bms and wiping.

Prepping for a c-scope will definitely tear open a fissure...I would say it's more from that than from the scope itself.

I would suggest you call your doctor and ask for a prescription for protocedyl or something like that which used on the fissure will definitely help heal it. If you're uncomfortable with your scope in 5 weeks, call to make it a date a few weeks later.....although 5 weeks is a long time to heal.

Hope you feel better soon.
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/18/2008 10:07 AM (GMT -7)   
it took me a few months to get my bm's down to 1 to 2 times a day.

check w/your GI about your concerns. If you need to put off the colonoscopy then do, but you should get one at some point, it will help address your needs.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 20mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your protiens!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Yorkshire Lass
New Member


Date Joined Apr 2008
Total Posts : 18
   Posted 4/22/2008 12:26 PM (GMT -7)   
Hi RichardUk

I'm waiting for a colonoscopy for the first time too. And I first went to the docs with anal fissures - they are complete agony!!! Like passing a very large hedgehog... Proctosedyl helps as it contains a painkiller and some hydrocortisone so perhaps you could get some prescribed; it helps with any sore patches low down in the rectum too but don't try and reach too far!!!

Those moist toilet tissue wipes help too. I always laughed at the idea of them but they are very cooling and soothing when used after your normal bog roll.

Good luck with the colonoscopy, I would be grateful if you could let me know how it goes - might help me prepare mentally!

All the best

Louise
Louise

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