Rant: People who just don't get it!

dakotagirl

Veteran Member

Joined : Apr 2006

Posts : 3402

Posted 4/18/2008 9:15 AM (GMT -6)

I know that my moods have been bad with this flare - and at times rightfully so - but yesterday I about flipped, not once, but three times... (if only there was energy for flipping out)

First: lying on the couch, trying to gather enough energy to peel myself up to go to work. Dentist office calls. I've been trying to get in touch with them for two days. I'm supposed to get a few small fillings on Monday and just don't see that happening - so I wanted to reschedule. The lady calls to confirm and I ask if they can schedule someone else, I know it's short notice, but I haven't been feeling well. She says, "but it's only Thursday, you'll be feeling better by Monday."

REALLY!?!?! I will be?!?!? That would be great - but I doubt I'll be 100% in three days. Come on lady! I didn't even have the energy to go into the "I'm dealing with a chronic medical problem (which is in my dental records) and just can't do it" line.

Second: still on the couch, credit card telemarketer calls. Asks for me, asks how I am. I respond with "not well." Oh, what's wrong with you? "not feeling well." Should we call back? "no" but we want to discuss some money saving offers with you... click.

I get it's just their job, but don't badger me!

Third: after work at the chiropractor's office. I basically colapse into a chair, exhausted. Some other patient I haven't seen before, says "that's how I felt when I first started coming here".

I wanted to go off with: REALLY!?!?! You felt like your intestines were shredded? You haven't slept well in a month? You just spent three days in the hospital? Instead I just said "no", shook my head and tried to ignore the annyoing do-gooder. Yeah for him and his relief, but he doesn't know a dang thing about me and should assume so.

I know none of these people mean to be irritating, but the questioning and assumptions just made me so mad! Good thing I can rant here and avoid screaming at people :)

Pan-colitis and GERD diagnosed May 2003

Osteopenia diagnosed Feb 2006

Status: Flaring :(

40mg pred, Asacol 12 per day, Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D

Co-Mod for the UC forum: Keep HealingWell running smoothly: www.healingwell.com/donate

Red_34

Elite Member

Joined : Apr 2004

Posts : 23551

Posted 4/18/2008 9:30 AM (GMT -6)

LOL yeah, Dawn - only we can appreciate a good vent! :) I have days like that too where it seems that what everyone says just sets me on edge. Ok, so take a deep breath, count to ten. Don't answer the phone and don't make direct eye contact with your victims. I don't want to be seeing you on the evening news about the lady that went on a rage rampage thru a mall in Texas :) Hang in there girl, I know things are pretty dire right now but it will get better. I know it will! Have you been sleeping lately?

^{@--->--SHERRY--<---@}

^{Moderator for Allergies/Asthma and Co-moderator for UC}

^{~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**}^{~Allergies-Singulair}

^{~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06}^{~Sacroiliitis}^{-epidural injections}

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Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5195

Posted 4/18/2008 10:50 AM (GMT -6)

RE telemarketers: there is a national DO NOT CALL registry that one can get listed on easily. It takes about 6 weeks to go into effect once a person has registered the phone number there, and is supposed to protect the number for 5 yrs, when renewal on the list is required. I've already been on the list for 6 yrs and can vouch for its benefit against unwanted profit-driven calls. That still leaves us susceptible to nonprofit & political organizations' pestering, but Constitutional protections come into play there. Give it a try! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

tjf

Veteran Member

Joined : Dec 2005

Posts : 3238

Posted 4/18/2008 10:54 AM (GMT -6)

Vent away! Are you feeling any better?

Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum

dakotagirl

Veteran Member

Joined : Apr 2006

Posts : 3402

Posted 4/18/2008 10:58 AM (GMT -6)

Ah - if only there were energy for a mall trip! I know it's not worth the energy to get too bent out of shape about - hence the vent!

Not much Wednesday night, but I slept about five hours last night - only with the help of the Ambien. Then after a bathroom run, I can nap for about two more before I'm up and full of nervous energy again. So, it's better than none, but not as good as 10... I have a call into the doc to see if over the weekend I can maybe take a second Ambien and sleep for longer. As much as it pains me to leave things go another weekend, the dust, clutter, and dog hair will be there next week!

Pan-colitis and GERD diagnosed May 2003

Osteopenia diagnosed Feb 2006

Status: Flaring :(

40mg pred, Asacol 12 per day, Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D

Co-Mod for the UC forum: Keep HealingWell running smoothly: www.healingwell.com/donate

Bigphule

Regular Member

Joined : Dec 2007

Posts : 137

Posted 4/18/2008 11:03 AM (GMT -6)

Just remember that revenge is more fun when they don't see it comming. So put on your biggest and fakest smile and then.... okay I'll let you use your immagination. (I understand this board is PG, I just can't see talking about BMs holding a G rating) What I hate is when people at work look down at you because you're going to the bathroom every hour or worse. Hey trust me I would give just about anything to not have to deal with that. I'm soooo sorry that my frequent trips are an inconvienence to you.

Diagnosed UC 12/2007

Prednisone 15mg x 1/day ~ On going recent change 4/3/2008

Sideshowbob

Veteran Member

Joined : Sep 2005

Posts : 698

Posted 4/18/2008 11:05 AM (GMT -6)

Yeah it sucks being sick. If you want to sleep longer try zopiclone. puts you out for about 10 hours of solid sleep. I use them off and on to help with my sleep issues.

Oh, and a big hug of sympathy for you. :)

35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum

dakotagirl

Veteran Member

Joined : Apr 2006

Posts : 3402

Posted 4/18/2008 11:36 AM (GMT -6)

Nurse called back - going to go for the second Ambien when I wake up too early this weekend. They said it's best to try that on the weekend to see how you react. Um, yah. That's a given.

We are on the do not call registry - land lines and cell phones. I'm about ready to get rid of my home phone line - grrr! But need it for DSL and dish access. We get SO many calls for people who used to have our number. It's truly ridiculous. Usually we don't answer the phone unless we recognize the caller ID - which is sporatic at best around here! I'll end up with voice messages that I didn't even know about because they didn't show up in the ID...

Bigphule - I can see the faces now... You have bloody D too? hahaha

Bob - thanks :) I'm going to check out that other sleep aid and if this doesn't work, I'll call the doc about it.

Pan-colitis and GERD diagnosed May 2003

Osteopenia diagnosed Feb 2006

Status: Flaring :(

40mg pred, Asacol 12 per day, Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D

Co-Mod for the UC forum: Keep HealingWell running smoothly: www.healingwell.com/donate

kb5

Veteran Member

Joined : Jan 2007

Posts : 1015

Posted 4/18/2008 11:42 AM (GMT -6)

I say unplug that land line! Use it for DSL and Dish but don't plug a phone in! My phone likes to ring at 630 in the morning so i just turn off the ringer if i don't want to be distrubed. Anyone who needs me knows to call my cell anyway. Hope you start feeling better!

Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 5mg pred, 150mg Imuran
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
Remicade started 3/1/08...just had 3rd infusion

NuffinButtTrouble

Veteran Member

Joined : Mar 2007

Posts : 679

Posted 4/18/2008 12:00 PM (GMT -6)

dakotagirl,

I was angry yesterday because UPS refused to deliver a package for the third time, which mean't my much needed supplements would be shipped back to the vendor. It was all my fault because I signed the slip they left, but I forgot to check a checkbox on it...urgh!! All my much needed (and expensive $117 worth) new probiotics would be shipped back and I'd have nothing to take until Tuesday at the earliest. Talk about angry :( anyway, thankfully my nutritionist had some in the office (sometimes more expensive), so off I went this morning to the City (what a pain) to get them.

I don't know why, but I still feel angry even though I have the supplements (not good for uc, I know)

Feel better.

NBT

Diagnosed with Ulcerative Colitis January 2007

Meds: ~~Remicade~~, ~~Primal Defense Ultra~~, ~~Multi-vitamins (also iron, B12, Magnesium and Zinc)~~, ~~Flaxseed~~/Natures Bounty Fish Oil

~~Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily~~

~~Carrot & Garlic supplements (natural anti-fungal) x2 daily~~

Currently taking herbal meds in the search to regain full health.

Post Edited (NuffinButtTrouble) : 4/18/2008 11:03:15 AM (GMT-6)

Beth75

Veteran Member

Joined : Jul 2007

Posts : 2148

Posted 4/18/2008 12:01 PM (GMT -6)

Unless someone has gone through it, they don't have a clue.

I have a friend who always insists she knows what I am going through I had a few cocktails the other day and she was on her kick of, 'if you can't have a baby, i'll have one for you'. (she is a little insane too, and for that reason I would not let her carry my baby, if I needed someone). I was like well my uterus is just fine thanks, it's actually my colon and kidneys but I will be ok and will be able to have kids, thanks for the offer and goes on to tell me how she knows how I feel and blah, blah, blah.

I was like I have two chronic illnesses, working on my third one, you have absolutely no idea how I feel..........but what I did not say was, I am so much happier being myself than her, b/c she is delusional and I love my life besides the chronic illnesses and stuff that goes along w/it.

I wonder if I would be as sensitive to others needs and boundaries, if I had not gone through all this? I'd like to think I would be. (not saying that I am perfect but I try to respect others)

Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission

UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07

Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.

Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08

Prednisone 20mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your protiens!

Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.

Mellie

Regular Member

Joined : Mar 2008

Posts : 110

Posted 4/18/2008 5:07 PM (GMT -6)

I know what you mean!!! I was laying on the bed last night with an ice pack on my leg to numb the injection site for my third dose of Humira and my BF was next to me on the phone talking to his best friend about some baseball stats...I got ready for my injection and went for it...it hurt BAAAAAAD. I saw that I had a blood droplet at the injection site and went to get up and go get a bandaid. when I got up I guess the meds flushed around under the skin because the pain shot through my leg again. I doubled over and said afew choice words. He didn't even ask if I was ok...so busy with baseball....I know its mean but I swear...those who don't hv to shoot meds into themselves, take tons of pills, etc...just don't GET the pain, tiredness, lack of sleep......

Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.

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