How quickly life changes

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Lew1201
Regular Member


Date Joined Mar 2007
Total Posts : 111
   Posted 4/20/2008 10:11 AM (GMT -6)   
Well 6 weeks ago we were in remission and feeling great and today we are two days since my son's ileostomy.  He's got an amazing attitude and had the most wonderful surgeon.  He is trying to do everything possible to get out of the hospital. We are going totally stir crazy as we were in a full 8 days before they determined that surgery was the only option.  Thanks for all the support you guys offered and I wish you all the best of luck. I guess it's time to switch "conditions". 
Mother of 18 year old son
Remicade
6MP 100mg


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/20/2008 10:30 AM (GMT -6)   
It is amazing how quickly things can change. I'm glad to hear that your son is feeling well post surgery. You're always welcome to post here - even now that he's UC free :) We love hearing how people do post-op.

Best of luck staying sane in the hospital! Movies, games, music, books - that's about all I can recommend... It's sure hard to stay entertained while sitting in one spot. Even things you normally enjoy get boring...
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Cortifoam, Aciphex, Forvia, and Pro-Bio, Calcium, Vitamin D
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30708
   Posted 4/20/2008 11:49 AM (GMT -6)   
WOW....awesome he's feeling better!!! The road to healing takes time, and can be up and down, but his optimism will come in handy.

Keep us posted even though you'll be changing forums.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 4/20/2008 12:27 PM (GMT -6)   
I'm also glad to hear your son is doing better. If you or him have any more questions feel free to join us ostomates over on the ostomy board! (I know I've seen you post there before about surgery questions). Remember to walk everyday! Oh, and ask your surgeon for things to look out for in terms of developing complications, something I wish I had done. Good luck with the recovery!
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)

Meds:
Coumadin (6mg daily, 9mg two days out of the week)


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 4/20/2008 2:05 PM (GMT -6)   

Lew, I am sorry any decision like this had to be made but I am very glad your son is on the mend. May he have a speedy recovery and a healthy life ahead of him! I know you started posting on the Ostomies forum.  I "lurk" there often because there is a chance that bratcat may need surgery in the future.  I will be reading your posts about your son's recovery (and improvement). 

All the best, Bennie.


--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


Old Mike
Veteran Member


Date Joined Jan 2007
Total Posts : 3871
   Posted 4/20/2008 6:58 PM (GMT -6)   
Dont try and push things too fast, your son is young and will heal quickly, but in the early stages of
recovery some unexpected events can happen. We spent about 30 days after my son failed colon
rescue meds. He was in such bad shape they had to fatten him up on TPN before they could
do the colectomy. Not fun to be sure but 8 years later he is fine with a pouch.
Old Mike

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/20/2008 7:45 PM (GMT -6)   
Glad to hear he is feeling better! Please keep us posted on how he is doing. Wishing him a quick recovery!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum

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