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New Member

Date Joined Apr 2008
Total Posts : 6
   Posted 4/21/2008 7:00 AM (GMT -6)   
I am new to the forum so hello everyone. I am 35 years old and living in Ireland. I was diagnosed in the past 3 months with mild colitis. I've been through two types of medication that made me extremely ill and am now on enamas. I was delighted to see this forum as I have found that not being able to share openly my feelings and frustrations has been the worst thing. I do have many questions but my most immediate is: Can colitis go from being mild to severe? Can it spread?
I'm looking forward to being part of this forum-Meg

Veteran Member

Date Joined Dec 2007
Total Posts : 1028
   Posted 4/21/2008 7:17 AM (GMT -6)   
Hi meg, and welcome.  I don't really know the answer to your question, but in my experience I think it can spread and get worse.  But, I was diagnosed with left sided colitis and about 45 cm of my colon affected.  It is now 10 years later and it is holding steady.  I think once you start treatment, the likelyhood of it spreading decreases tremendously.  At least this has been my experience.....I am sure others will weigh in on your question and correct me if I am wrong.  Best of luck.

diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female

Veteran Member

Date Joined Jan 2007
Total Posts : 1015
   Posted 4/21/2008 8:30 AM (GMT -6)   
Yes it can spread. It isn't as common as it seems from this site but it can spread. It's important to keep up with your meds even in remission. What meds made you sick? You can create a signature that lets eveyone know what you are on and what you have tried so we don't all keep recommending the same thing. Just go into the control panel and edit profile.

How are the enemas working for you? For many they have been the key to getting to remission.

Welcome to healingwell! I'm sorry you need us but glad to have another member.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 5mg pred, 150mg Imuran
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
Remicade started 3/1/08...just had 3rd infusion

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 4/21/2008 9:11 AM (GMT -6)   
Hi Meg, welcome to Healingwell :) Yes Uc can spread but it depends on many factors. One of them being predisposed to the spreading. Some people that have Proctitis (inflammation in the rectum only) may only have that for the rest of their life while others can have an aggressive form of it and take over their entire colon within a matter of days/weeks/months. No one can really determine if it's going to spread or not. But you can try to minimize that risk by taking good care of yourself and treating the UC by either the proper food, medicine, supplements etc. Same can be said of severity.

Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 4/21/2008 11:07 AM (GMT -6)   
Hi Meg and welcome,

Can it spread? Well for me it did, my GI says in only about 20% of the cases it does, so I am one of the lucky ones.....I can't keep on playing the odds game = )

I was dx'd w/Proctosigmoiditis is 2000 and it affected .25cm of my colon, in 2005 I had a colonoscopy and it was .30cm of my colon and after that I got lax taking my meds and was ok on and off. If I flared then I would take my meds as prescribed and be ok. In Sept 07 I was recovering from a flare and had to stop taking Asacol cold turkey (in retrospect, I should have weaned off of it) and was put on pred, then I had the worst flare ever and now am in remission but my colonoscopy on 4/4/08 showed that I have pancolitis now (affects my whole colon) though I think I have a 'mild' pancolits. (seeing that word associated w/myself still scares me).

I think if I had taken proper care of myself as Sherry mentions and not stopped Asacol cold turkey, I might not have pancolitis and not have gone through as bad a flare as I did. Whatever you do, I would always recommend researching it fully, discuss w/your GI and any time a flare starts up to contact your GI immediately. This is all just based on my recent situation.

HTH! Stay Well!
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 20mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.

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