uc and pancreatitis

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lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/21/2008 11:38 AM (GMT -6)   
Hi,  Wondering if anyone else has this kind of problem.  Having abdomal pain.  I just went through a meckel scan (scan of small intestines) and an ultra sound and a blood test.  Scans and ultra sound came back noromal, Thank God, but the blood test says I might have pancreatitis.  I have to go for another blood test tomorrow and also a stool sample.  I came out of the docs office crying...it seems I go from one thing to another.  It gets me down.   I'm still tapering from a flare in March and so far so good on that end.   
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/21/2008 12:08 PM (GMT -6)   
I'm going through this right now. Having horrible abdominal pain. First round of blood work showed 'slightly' elevated pancreas levels (not sure the technical term). I just repeated blood work this past Monday. If elevated again I'll have a CT scan to see what is going on.

Hang in there and keep us posted!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/21/2008 12:28 PM (GMT -6)   
tjf...Sorry to hear that you're going through the same thing. It seems like it never ends. We'll both hang in there. Let me know how you make out and I'll do the same. Thanks for being there.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/21/2008 12:32 PM (GMT -6)   
I just called and left the nurse a message. I can't wait any longer! Will let you know!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 4/21/2008 12:53 PM (GMT -6)   
lenie...wow, you're going through a horrific time right now! I'm hoping it's as simple as a slightly blocked pancreatic duct (gallstone).

What test exactly stated you might have pancreatitis? Do you know the ##?

When do you see the doc next?

Hang tough...I hope you get answers soon.
quincy xx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/21/2008 1:30 PM (GMT -6)   
Hi quincy...good to see you. Doc didn't give me any numbers, he just said accourding to the blood test it looks like pancreatitis. I'm one of those who don't ask enough questions when I go to the doctor. I have another blood test tomorrow. I go back to the doc on the 30th but I'm going to call the nurse and ask her to get me in sooner if the results should come back before that. You mentioned a gallstone. I don't have a gall bladder. Had that removed about 20 years ago. Quincy you gave me some good advice about tapering and I'm following that. I had a flare in March and I'm still getting off the entocort. I'm down to one a day. I still take my 6 asacol daily. I mentioned it to my doc today and he said fine. I really don't want to stop the entocort because I'm been doing good on that end. Thanks for being there.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


jasperthedog
Regular Member


Date Joined Mar 2008
Total Posts : 68
   Posted 4/21/2008 3:36 PM (GMT -6)   
Hi! I was diagnosed with pancreatitis 4 years ago in 2004 (diagnosed with UC in 1999). My recent endoscopies have revelaed that I now have chronic pancreatitis, because my ducts look very worn and ragged. I have absolutely nothing wrong with my gallbladder. My ERCP showed that I had some sort of tumor blocking one of the ducts, but my Dr. couldn't get past it during the procedure to remove it. I had the CA 19-9 blood test for pancreatic cancer, and it showed that my levels were elevated for it. More pancreatic tests were done and no cause has been found. My Dr said that Cystic Fibrosis is usually a cause for chronic pancreatitis if no other cause is found. I had a sweat test done and my #'s were in the inconclusive range! So needless to say I have flare ups with my pancrea*** often. If you have any questions, hopefully I can help! Sorry you are going through this, I know how you feel! My Dr. was hopeful that if we got my Colitis under control, the pancrea*** may subside!
Cara

lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/21/2008 7:25 PM (GMT -6)   
Cara thanks for taking the time to give me this information. This is all very helpful. I have pain in my upper abdoman, nausea, swelling around my middle and back pain. What are your flare ups like with your pancreatitis and how often do you get them? Are you on special meds for this? Thanks again. Arlene
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 4/22/2008 3:06 AM (GMT -6)   
Hi lenie...you're most welcome. Happy to hear the tapering is going well.

I think there are some who have UC-related pancreatitis...especially for those of us who don't have blockages or drink or have taken innumosuppressant meds or have CF....etc.
I would think there is a CF marker that could be tested for...

My sister has pancreatitis...but that's from blockages from gallstones (that she seems to produce without a gallbladder).

If you are getting other tests done...I would suggest the MRCP (MRI) done firstly rather than an ERCP.

Please keep us posted....I truly can relate to your fears...I've been diagnosed with UC-related liver disease..scary indeed.

I do believe that keeping the UC flares to a minimum will help with the other related extraintestinal problems (if they are indeed related).

The guessing and worrying is always worse from my perspective.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/22/2008 11:45 AM (GMT -6)   
Hi quincy,  This waiting around for tests and results of tests does worry me.  Hopefully it's just another pill I'll have to take.  I'll add that to the cup of pills I take already.  With all the pills I take I can skip a meal, I'm full of pills.  I'll keep you informed.  I need to feel better so I can take care of hubby who just found out he has prostate cancer.  He was there for me when I had breast cancer.  Sometimes it feels like it never ends.  But we'll hang in there and get through all this.    Thanks for being there  for me. I really appreciate being able to talk to someone.  Arlene
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


jasperthedog
Regular Member


Date Joined Mar 2008
Total Posts : 68
   Posted 4/22/2008 12:20 PM (GMT -6)   
Hi lenie,
I do not take anything for the pancreatitis. The only thing you can do is have a pain pill and something fot eh nausea. Like the previous post, quincy, I believe said, your doctor will probably do the MRCP first. It is like an MRI only they inject contrast to see if a duct is blocked. Mine showed the tumor so he did an ERCP (scope down your throat) I seem to have flare ups often but that is the difference between chronic and acute pancreatitis. If this is the first time you have had it, it may be the last. Many people only get a flare up once. I don't kow what your case is. If your Dr. suspects CF it would probably be after some other tests were done to rule out other possibilities. While you are having a flare up though, you should do a liquid diet for a few days to let the pancreas rest (or whatever your Dr. told you to do) In my case that usually works better, and helps me get over it faster. I hope you feel better soon. Do you know what tests your Dr. is going to order next?
Cara

lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/22/2008 12:39 PM (GMT -6)   
jasperthedog....Thanks for writing back. I really appreciate it. I don't know what tests will be next. I'll wait until the doc gets the blood tests results back. He also did a stool test. I had no idea what was causing my pain but I did notice that about an hour and a half after I ate it got worse. Over the weekend it was so sharp I thought of going to the ER but I waited until Monday and went into the doc. That's when he started with the blood test and CT Scan of upper abdoman. CT Scan came back normal. I have an appointment to go back to him on April 30 and I'll get the results of this blood test. I'll keep you posted. Thanks a bunch for being there. I hope you stay well.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 4/22/2008 1:04 PM (GMT -6)   
lenie....I'm sad to hear about your husband's recent diagnosis of prostate cancer. What's the plan...surgery, radiation or?

I can't remember when you went through the treatment for breast cancer...could that possibly be a reason for the pancreatitis?

Depending on what is causing your pain will determine possible meds/enzymes..etc.

My sister doesn't take anything for hers, except pain pills when she gets bad.

I refused the ERCP to diagnose PSC because it can cause pancreatitis....I waited 9 years to have the MRCP...didn't want more problems. I'm glad I waited.

quincy
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/22/2008 1:36 PM (GMT -6)   
quincy...My husbands plan is to go over to a prostate cancer team at Celebration Hosp. in Orlando, Fl. He's looking at cryoablation. They freeze the gland and that kills the cancer. My breast cancer was in Nov. 2005. My doc blames my uc on food poisoning (salmonella)that I got in June of 2005. Reading about pancreatitis I found that there are studies that show that uc can cause pancreatitis. I wouldn't mind but just when you think things are looking rosy (my uc is very calm) BAM!!! I get this curve ball thrown at me with the pancreatitis. Some days I want to look up at the heavens and say, "Give me a break" But we'll handle it. It's comforting to know there are people out there (like yourself) who have handled all of these things or similar things or worse things and are still going strong. Thanks quincy. Arlene
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted Yesterday 12:46 AM (GMT -6)   
Hi Arlene...I've never heard of freezing the prostate to kill the cancer..interesting. Have to look it up.

I say "give me a break" a lot....more regarding my back, however.
One wrong move and the familiar twinge....thankfully Robaxin can be purchased through the pharmacy..sigh. I do take Robaxacet...probably will fry my liver, but I figure the meds will help as well as all the coffee I drink..lol!

I won't deny I'm scared if things regarding my liver go south...

Yes, it's possible regarding UC-related pancreatitis (which is the autoimmune aspect of it), but you have to find out the reason firstly. There may be meds/enzymes you can take to prevent further problems....as well..I believe keeping the colon as calm as possible will help us when other issues happen at the same time.

We take a day at a time, and life goes on. All we can do is learn as much about stuff as we can, know exactly what we're dealing with and how to treat/maintain so that we can function as best we can.

We never know what tomorrow will be like...although I'm a pessimistic optimist...I always hope it will be a good one.

Hang tough...answers are always helpful even though sometimes tough to swallow. You've been through what I fear already...so your experience will get you through this as well.

quincy xx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted Yesterday 11:17 AM (GMT -6)   
quincy...I go back to my doc a week from today for results of blood test. They drew 9 viles of blood. I know one test was a CA19-19. In that one I think they look for cancer. I'll be a nervous wreck until next Wed. I'm the type that jumps right to the worst results. I think I'll take an extra xanax to calm me down. Nice for you to be there quincy, I really appreciate it. Arlene
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted Yesterday 1:49 PM (GMT -6)   

9 VIALS....WOW!!!

I have this link you might be interested in....I found it extremely helpful. 

http://www.labtestsonline.org/

Scary indeed, but at least you have Xanax..lol!

q

 


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted Yesterday 4:13 PM (GMT -6)   
Quincy..thanks for that link. Like you say, it's very helpful. I'll save that. I called my gastro doc this afternoon and asked the nurse that since I'm seeing my Internal Med Doc. and if by chance my results should be back, can he tell me the results. She said yes. My gastro dr and the internal med doc are in the same building. So maybe i'll be able to get some results on Mon. I'll let you know. Thanks quincy, appreciate you being there. Arlene
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


waterdog
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted Yesterday 9:26 PM (GMT -6)   
I am sorry to hear about your husband and all the problems you are going through. I will keep you both in my prayers.

lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted Yesterday 9:41 PM (GMT -6)   
Thank you waterdog, appreciate the prayers and God Bless. Hopefully I'll be able to report good news.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted Today 11:55 PM (GMT -6)   
lenie...it's nice to have the docs in the same clinic building....I have the same situation and have gotten some results while seeing the other doc.

You could/should ask for a copy of the results...good to have because we'll be asking about the numbers as well as for your own personal records..etc. I started to ask for copies and it's been good to have them available rather than trying to remember numbers, tests..etc. Also it's great for doing some research (regarding tests/numbers) on my own.


Looking forward to Monday's report....hope you have a feeling-well weekend.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 4/25/2008 9:20 AM (GMT -6)   
hi quincy...I just got off the phone with the nurse at my doc office. I'm feeling crappy & I was hoping the results of tests would be back. She said some have come back but not all. The ones for the pancreas have not come back yet. She moved my appt. up to Mon instead of Wed. I'll give her a call on Mon morning to see if all results are in, if they're not in than it's Wed. You are so right about getting copies of tests. I'm usually so nervous when I go to doc that I forget to ask for copies. From now on I will get them. I even told my husband to remind me of this. I have to start taking charge of myself. Thanks quincy. It's always so good seeing you out there. It really helps me knowing someone understands what I'm going through. Pretend I just brought you over a plate of homemade cookies as a thank you..lol Arlene
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 4/25/2008 11:03 AM (GMT -6)   
make a list....I always bring one with me and put it on the desk beside where I'm sitting. Sometimes my GP will just take it and look. Kind of interesting about that (shocked me at first). It just makes the appointment more effective.

I write it in large print at the top *COPY OF BLOOD TEST RESULTS*

You'll never forget a topic again....I'm nervous as well and do kind of feel better once I'm there .. probably because of the increased adrenaline. There's nothing worse than forgetting something.

I love cookies and cake by the way!! LOL! I'll enjoy them vicariously. Your gesture is most appreciated. No need to keep thanking me, however..I'm genuinely interested. I can relate to only so much of what you''re going through/you've been through.


I hope your results are in by Monday...what a great doctor you have!

Hang tough with how you're feeling...have you tried any pancreatic enzymes to help digest food? Maybe that can help?

Hope tomorrow has you feeling better.
quincyxx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Pessimist
Regular Member


Date Joined Dec 2007
Total Posts : 34
   Posted 4/25/2008 1:25 PM (GMT -6)   

Somebody is making you suffer unnecessarily.  I have had my blood tested for pancreatitis several times and the results were always back within an hour. 

 

The good news is that the results are usually pretty conclusive, so you will likely get a clear answer.    


M-39, UC Diagnosed June 2007

Other stuff:  Migraines/headaches, high blood pressure, essential tremor

Previous Meds: Colazol (caused pancreatitis), antibiotics, Prednisone (several cycles 20mg/day)

Current Meds: Remicade beginning in Oct ‘07, various vitamins, Imitrex, Lortab, Lisinopril

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