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Mule
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted Today 11:57 AM (GMT -6)   
Hi to All,
Just another new person with a lot of questions....
 
Diagnosised in 1984 with mild U/C. Did not have a flare for 16 years, until 2000. Have had 3 flares since. Going through my 3rd flare presently. This time my body is not responding to the Asacol....Kinda' down about it. Been going on since mid Jan.
 
Does anyone know if one can develop an allergic reaction to Asacol after you have been on it for awhile???
 
Over the past month I upped the dosage to 3 pills 3 times a day, per the Dr.'s ok. And I had noticed the tip of my tong would be raw...It kept getting worse....sores in the mouth. And last week I started getting whelps on my left hand and a few on my face????? Called the Dr. and he said that I had something else wrong...that since I had been taking the Asacol...the problems I'm having are not related. But, go ahead and stop the Asacol until this week.
 
Just wondering if anyone else has had similar circumstances.
 
And, yes the sores and whelps are going away....slowly.
 
Thanks, Mule
 
 

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted Today 12:36 PM (GMT -6)   
Hi Mule, welcome to Healingwell :) Yes you can still develop an allergic reaction even if you've been on it long term or before. I was on Asacol for 12 years when my body decided that it didn't like it anymore. For me though, I had severe abdominal pain, increased D and bleeding. Once I switched to Colazal, things got better.
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Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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quincy
Elite Member


Date Joined May 2003
Total Posts : 30384
   Posted Today 12:48 PM (GMT -6)   
Onecan definitely be allergic to salicylates or maybe sensitive to some of the 5ASA meds.

You aren't on any rectal meds....maybe ask the doc to prescribe you a steroid retention foam enema (not a 5ASA) to see if that helps.

Your symptoms could also be autoimmune or stress? Are you taking any other meds or supplements?.

How long have you been on Asacol?

Where in the colon is your UC....throughout or limited?

Welcome to the forum, Mule!....


quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


tanna
New Member


Date Joined Dec 2007
Total Posts : 11
   Posted Today 1:57 PM (GMT -6)   
My daughter is allergic to Asacol and got Pacreatitis, she was very very sick.  She took it for about a month before the pacrea*** show up. 

Mule
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted Today 5:47 PM (GMT -6)   

Thanks for the replies....so glad I found this Forum....Good to know that someone out there has empathy.

Qunicy....I've been on Asacol since mid January. And is the only thing I've taken. In times past I've responded well to Asacol. Symptoms would clear up and I would stop the dosage. Guess I've been lucky till now.

The UC is limited to just the lower part of my colon...sorry I'm not able to describe with the correct colon terminology.

But, to add to what happened to me last week, I thought I was having an allergic reaction, because the symptoms of UC had gotten better, for awhile, then last week got worse. The Asacol seemed to be making me sick. Hard to explain, because the symptoms of UC seem to be the same as the symptoms of an alergic reaction to Asacol....If I'm reading the Asacol fine print correctly.

Thanks to all of you for your replies....This is truly a blessing just to get to talk to someone.

Thanks, Mule

 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted Today 6:33 PM (GMT -6)   
Hello there :) Welcome to HW! The members here are great - lots of empathy, experience, and knowledge.

I get sores on my tongue when I flare. Usually it means I'm low on B12, so I supplement with B12 pill. Sometimes I'll even dissolve it on my tongue - it doesn't have much of a taste. I will also use Biotene mouthwash - as it helps balance bacteria in the mouth - to help with the sores.

I hope you find something that works for you!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Mule
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted Today 8:31 PM (GMT -6)   

DAKOTAGIRL!!!!......Thank You!!!!....I had no idea about the B12 supplement.

That little bit of information is what I'm looking for....It may not work for me...But it's worth a try. Then I may start back on the Asacol.

Thanks, Mule

 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30384
   Posted 4/22/2008 2:50 AM (GMT -6)   
And rectal meds....please consider them.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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