Humira here I come!!!!

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soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 4/23/2008 10:38 AM (GMT -7)   
So, my last Remi infusion did absolutely nothing to help me.  I called my GI doc yesterday - and they made me come right in.  Anyway, I am going to start Humira ASAP.  I had to go back to the clinic today to talk to 2 nurses about how to inject myself.  They are working right now with my insurance.  Doc said the medicine usually comes in within a few days.  I am anxious to get this started - but the 4 shots for the first induction make me very nervous.  The nurse said today that Humira will send a nurse to my home to help/watch me administer the shots for the first 3 times.  It is all kinda overwhelming.  I will let ya'll know how it works....

Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


MBJOH
Regular Member


Date Joined Mar 2007
Total Posts : 257
   Posted 4/23/2008 10:43 AM (GMT -7)   
I am on Humira for Crohn's disease and it has worked well. The nurse coming to your home must be a new thing. I did my first two rounds of shots at my docs office so I could learn how to do it and so they could watch for any reactions. But that was a year ago. A word of advice - bring it to room temperature and ice the area you are going to inject it into. I started of injecting into my stomach but have switched to my thighs because it always seemed my waistband on my pants fell where I had just given myself the shot. Good luck. MB

soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 4/23/2008 10:55 AM (GMT -7)   
Thanks for the info. I don't think I will try the stomach shots - sounds painful. I am going to try just the thigh area.
Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/23/2008 3:12 PM (GMT -7)   
I think that the thighs hurt more than the stomach, actually! (The first four I got 2 in stomach 2 in thighs) I totally agree with MBJOH about the ice and putting them at room temp. Ice helps a lot. The medicine really burns. REALLY. I just had my second injections last Friday in my thighs. Next one I am doing in my stomach. I really don't know if I will ever be able to inject myself. The liquid burns to much, I am afraid I will toss the shot across the room. My MIL is nice enough to do them for me. I have been seeing good results except for large welts at the injection site. I take Claritin for 4 days after the injections. Make sure the alcohol is dry before putting the injection in.


Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/23/2008 3:45 PM (GMT -7)   
good luck! I eagerly look for your posts, as Humira is next on my list also. The remicade is ......well, not helping near as much as it should be! It seems as if many people get those welts/reactions at the injection sites... interesting!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


soccermom3
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 4/23/2008 6:43 PM (GMT -7)   

Princescolon,

How has the humira worked for you so far?????

 


Diagnosed Pancolitis 5/05.
 
Hospitalized 2/08 Severe Flare
Hospitalized 3/06 Severe Flare
Remicade - every 8 weeks
Imuran - 100 mg per day
Asacol - 9 pills per day
Prilosec
Zantac


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 4/23/2008 7:42 PM (GMT -7)   
I have had recent success with Humira, too, but just had my dose increased to weekly, to try and get me to remission finally.

I totally agree with the above tips, and even though I was reluctant to try injections in the stomach, they are MUCH less uncomfortable than the thighs -- more fatty tissue. Now that I have been doing this for a few months, I can handle alternating with the thighs with less discomfort.

I would recommend having someone else administer the shots for you. The burn is intense, and I think I would not be able to hold the pen in place for the full 10 seconds. It helps to have someone firmly but gently do it for you.

My experience was that while I saw nearly immediate results with Remicade, it took me 4 weeks to see results with Humira (which is exactly what the fine print reads, incidentally), so don't get despondent if it takes a while to kick in.

Best of luck -- hope you have good results!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade
On Humira since 1/08 with promising results, but can't get below 5mg Prednisone
Take Tylenol #3 as needed when not in close proximity to a bathroom.
Currently on 40mg Prednisone again since mid-March flare, ack
4/9/08 Humira dose increased to 40mg/week, Start slow Pred taper

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