Is there a downside to Remicade....

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Regular Member

Date Joined Sep 2007
Total Posts : 63
   Posted 4/23/2008 9:42 PM (GMT -6)   
I'm about to start Remicade and I'm wondering if there is any downside I have not thought of. Since it has such a high success rate and relatively low if any day to day side effects why are we not all on it? Is cost the main issue or are alot of people afraid of the potentialy serious, although rare side effects (TB and such).

Please let me know if there is anything I may have over looked while making the decision to take this drug. I've just read so many success stories I'm wondering why everyone with Colitis/Crohns is not put on this drug immediately.

Also for those on Remi, how soon did you see results. I'm living in the dream world that I'm going to start feeling better right after my first infusion. My issue right now is a seriously inflamed rectum and none of the regular drugs are working... I've tried all the rectal meds, and I think I'm all out of oral drugs so Remi is all that's left.
29 year old male, diagnosed after bad flare in Summer 2005, quickly brought into remission by pred and salofalk. 2 years symptom free after that!!
Currently in a flare since summer 07 - I desperately miss remission!!!

Current Meds: finally off Pred (after months of 40mg), 2000mg salofalk, calcium supplements, Pantoloc, Buscopan, Clonazopam, Cortenema
Started 100mg Imuran Jan 15/08 - no noticeable effect yet... aside from nausea, vomiting, fatigue...

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 4/23/2008 10:03 PM (GMT -6)   
Numb, the majority of UC patients do well with 5-ASA medications and short courses of steroids during their infrequent flares. Those people aren't here, because their lives aren't affected enough by UC for them to seek out support. In the spirit of "first, do no harm," doctors prescribe the drug with the fewest side effects first. Also to help keep everyone's cost of health insurance from going even higher. Some docs are now starting to use Remi before the immunosuppressant drugs.

I felt better after my second infusion, and much better after my third. I then continued to get a little better for the first year before stabilizing. I've seen some people say they felt better after the first infusion, some weren't noticibly better until the fifth. Remember that even if the medication stops the ongoing inflammation, you colon still has to heal and that does take time.

Good luck with your Remi. Hope you have great success.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.

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