Posted 4/24/2008 8:54 AM (GMT -7)
So, I have a complicated history, but basically I was dx'ed with Ulcerative Colitis, and then 4 months later someone finally ran a c-diff test, and low and behold I have c-diff. In the mean time they had been treating my UC with prednisone, I was on a steady dose of 40 mg (for over a month) ... at one point up to 60 mg. The c-diff was having a grand old party in me. I also gained 20 lbs (on my already ample frame) becuz of the pred, and I have lovely moon-face, etc.
So, since this all began I've been having sharp, shooting pains in my gut. Mostly on the left side, feels like someone stabbed me with a knife. Also sometimes when I bend or move it feels like someone is vertically stabbing me, (like from my ribs down).
So, I call the GI to let her know the pains are back now, full force. I finished my Flagyl 3 days ago and so far so good. No D. But some other things are still around, the mucous and sometimes blood. The pain is annoying to say the least. I just wanted to know if it's normal.
So I wait patiently for a call-back. Two days later, I get the call back from a "patient coordinator" (secretary) who relays the message that my pain doesn't sound GI related and I should see my family doctor.
Are you kidding me? I was a little miffed. NOT GI RELATED? I feel like ever since they found out I had c-diff, they are brushing me off. The problem is they are unsure if I have underlying UC with c-diff complication OR just c-diff. I was given the chose to "assume" I had UC and start Asacol OR I could finish the c-diff treatment and wait to see if the UC would "declare itself". Well I don't like maybes... so I went for option 2. This pissed her off. So now I'm just a waste of her time.