Just a vent....

So, I have a complicated history, but basically I was dx'ed with Ulcerative Colitis, and then 4 months later someone finally ran a c-diff test, and low and behold I have c-diff. In the mean time they had been treating my UC with prednisone, I was on a steady dose of 40 mg (for over a month) ... at one point up to 60 mg. The c-diff was having a grand old party in me. I also gained 20 lbs (on my already ample frame) becuz of the pred, and I have lovely moon-face, etc.

So, since this all began I've been having sharp, shooting pains in my gut. Mostly on the left side, feels like someone stabbed me with a knife. Also sometimes when I bend or move it feels like someone is vertically stabbing me, (like from my ribs down).

So, I call the GI to let her know the pains are back now, full force. I finished my Flagyl 3 days ago and so far so good. No D. But some other things are still around, the mucous and sometimes blood. The pain is annoying to say the least. I just wanted to know if it's normal.

So I wait patiently for a call-back. Two days later, I get the call back from a "patient coordinator" (secretary) who relays the message that my pain doesn't sound GI related and I should see my family doctor.

Are you kidding me? I was a little miffed. NOT GI RELATED? I feel like ever since they found out I had c-diff, they are brushing me off. The problem is they are unsure if I have underlying UC with c-diff complication OR just c-diff. I was given the chose to "assume" I had UC and start Asacol OR I could finish the c-diff treatment and wait to see if the UC would "declare itself". Well I don't like maybes... so I went for option 2. This pissed her off. So now I'm just a waste of her time.

GGRRRRRRRRRRRRRR! ARRRRRRRRGGGGGGGGGGGH!

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31 yr old female
Dx'd in 2/2008 UC (not sure how much, or where, LOONG story there, i'm sure i'm getting another scope soon)
Asacol 12xday, Rowasa 2xday (off these for now waiting for pred to work)
Prednisone 40 mg/day