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**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 4/24/2008 10:56 AM (GMT -6)   
I must warn you, this post may be a little graphic . . . . I was diagnosed with UC in Jan 2007. Since then, I've had 3 scopes and all the biopsies showed that I did indeed have UC. My only concern is that I don't the traditional UC symptoms. I was hoping to share the symptoms that I do have and get feedback to see if others with UC have the same. When I'm flaring (which has been a constant since this past Dec), I don't really have diarrhea (well, not watery bowel movements), my stools formed, but soft. I have severe cramping that makes me run to the bathroom. I'll go for a few minutes. Sometimes that crampy while going is to bad that I'll have to hold on to the sink. There is usually always blood. I'll leave the bathroom, but then have to run back a few minutes later. After a trip or two, I'll still feel like I have to go, but nothing will come out. The best way for me to describe it is like when you feel like you have to vomit, but all you do is "dry-heave." It's like that, but in my rear. Then, I usually have to sit on the couch for an hour because the pressure in my rectum is so severe. I can't sit directly on my butt . . . I have to kind of lean to the side. I get constipated a lot too. I'll feel full, like I should have to go, but then I won't have a BM for almost 2 days.

Anyway, this is usually how my days go . . . almost everyday. It makes working and taking care of my family very difficult. I'm constantly doing the enemas, but I don't know if they work. :(
Diagnosed w/ UC in Jan 2007
Always had bowel issues for years
Sulfasalazine- 3 pills 2x a day
Hospitalized - IV steroids for 9 days
Prednisone - 40mg . . . will start to taper in 7 days
Omega 3 fish oils
Probiotics


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/24/2008 11:23 AM (GMT -6)   
I have had most of those symptoms except for that constipation part, and the sitting part. It can get irritating cause you run to the toilet, and are like "Is that it? ***" Have to be a little careful when that lower colon is in spasm, that you don't cause alot of strain and make the bleeding worse. Where's most of the disease location?

I had one colonoscopy in 1999 I think..... then a small sig scope in 02 ish. I probably need to get another eventually, but it won't change anything about what I am doing now so I refuse it.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


Tightline
New Member


Date Joined Apr 2008
Total Posts : 2
   Posted 4/24/2008 11:53 AM (GMT -6)   
im sorry you have UC. it's very unpredictable. i have watery stools and have had them for years.

luckyily i dont work a real job. BUT i wished i could as i miss the money i used to make.

but going to the bathroom 15 to 25 times every 24 hours is killing me.

my legs cramp from loss of fluids, it's bad. but i hope you get better.

my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 4/24/2008 12:20 PM (GMT -6)   
I have very similar symptoms as you. I was diagnosed in September 06 and at that time I had constipation, blood, mucus, abdominal pain, rectal pain. about a year later I had a severe flare w/ countless BMs a day, pain, blood, mucus, nausea, etc. It was horrible. It lasted a couple of weeks. After that I went thru about the same thing you are going thru now. My doctor changed my meds from Canasa to Rowasa and Lialda and things have been a lot better. I don't have the incredible rectal pain and the urgency.
my3suns
 
Diagnosed with UC in September of 2006
My current meds are Rowasa and Lialda
Current state - Flaring


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/24/2008 12:30 PM (GMT -6)   
I am sitting on my side right now for that same reason! I go through the same exact thing, only my stools are usually hard and I go a little each time for hours. Then there are other days when I have severe D all day. Sometimes I take Lomotil for it, but it makes me drowsy and then I have more trouble going to the bathroom the next time. I try to get everything I can done on the days I don't go to the bathroom. :( But yeah, I go through the same thing. Last night I ate some steak and I almost vomited after and have been going through all the things you described ever since.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/24/2008 12:45 PM (GMT -6)   
That feeling like you still have to go is called tenesmus. Not uncommon with UC. Neither is constipation.

I see you're using the enemas. Have you tried Canasa (5ASA suppository) as well? Sometimes after a series of bms and my rectum feeling like it's going to come out - a Canasa can be very soothing - almost like it puts things back where they should be.

We're pretty used to graphic content here. In fact, in many cases it can help us to know what's actually going on.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
40mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 4/24/2008 1:18 PM (GMT -6)   
I have had both the runny D with lots of blood and mucous in my first flare and symptoms like you are describing in my latest flare. Each flare is different.

I found the 5ASA (I use Salofalk) suppositories help a lot with the symptoms you are describing.
 
 
Dx:  UC Proctitis 2006
 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering.
 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 
Added: tumeric and probiotics.
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/24/2008 1:38 PM (GMT -6)   
Nicole, I have proctosigmoiditis. When I was in severe flare, I had those exact symptoms, except every day. Never watery stools, just soft or occasionally slimy with mucus and blood always. Are you on any rectal medications? For people who can tolerate them, they can help get the rectal area under control and relieve the pressure and urgency.

Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 4/24/2008 2:57 PM (GMT -6)   

I've been having pretty much the same symptoms since last week. I have to run to the bathroom several times in a row and most of the time I don't get a regular stool--it's just blood. But I have to go to relieve the cramps. It is so annoying. I was using Canasa but that caused side effects and my GI has yet to call in enemas to the pharmacy.


Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects)
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 

Post Edited (ComedyDork) : 4/24/2008 2:23:26 PM (GMT-6)

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