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Yorkshire Lass
New Member


Date Joined Apr 2008
Total Posts : 18
   Posted 4/24/2008 4:19 PM (GMT -6)   
Hello everyone!
 
I have a UC diagnosis from my GP and first blood tests tomorrow.  I have everything from constipation to the runs with blood, constant tiredness, aching joints, rectal pain and stomach cramps - but no weight loss which would be a positive!  My favourite spicy foods have been banished from my life along with milk and wine!! sad
Having spent the last few evenings reading lots of threads on the forum, I would like to say how wonderfully supportive and knowledgeable the members are and it truly feels like a community - as I travel further along the road that is UC I know I will be able to gain useful advice and keep my sense of humour intact!
 
So thank you all!
 
 
 
 
Louise


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/24/2008 5:48 PM (GMT -6)   
Welcome to HealingWell, Louise. Like you, I have never had weight loss. Just weight gain from when I had to go on prednisone. Wouldn't you know it, there is one good physical effect of UC, and we don't get it!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 4/24/2008 6:19 PM (GMT -6)   
Welcome to the site Louise, This is a great place to learn all about UC. I learnt more here then I would have ever got out of my GI. I would be lost without all the good people on here.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30853
   Posted 4/25/2008 12:35 AM (GMT -6)   
Welcome to the forum Louise! Where in the colon is your UC and what meds did the doc put you on?

It's an up and down road to recovery. Hang tough.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Yorkshire Lass
New Member


Date Joined Apr 2008
Total Posts : 18
   Posted 4/25/2008 7:51 PM (GMT -6)   

Hi

Thank you for your replies and kind welcome.  To answer you Judy, I think I must have been a really bad person in a previous life! And potty girl; great user name!  I know that when I do finally get to see a specialist I will have some really great questions that wouldn't have occurred to me otherwise!  And quincy; where do I start? Not sure how it works in America so don't know how to explain... I have been to see a GP (General Practitioner - sure you probably know this already so apologies) at least 8 times in the last year with varying symptoms, constipation, diarrhoea, anal fissures, bleeding etc and have been told that i probably have colitis and to await an appointment with a bowel specialist.

In the last few weeks I have been back to the GP's again and again to mention the fatigue, joint pain, stomach cramps etc and to try and get some info on diet, ask whether the palpitations and faintness may be anaemia and to try and find out just how long it will be before I can get to see a specialist for a concrete diagnosis!  So this is a very long way of saying no meds at all!!!  The doctor I saw earlier this week was much more helpful and I felt as if I wasn't being dismissed as a hysterical middle-aged woman. 

Today, I finally got a blood test - the nurse that took the blood was ok but I asked her not to put any dressing on the site (I am allergic to the hypoallergenic tape) but she just did it anyway by saying "you can not allergic to this!"  I've got a lovely rash!  And the results will be available to me in a week...

Sorry, this has turned into such a vent but i am at my wits end!  I have always been a staunch supporter of the British national health service but right now, if I could afford to pay for private medical health care I would!

This really has turned into a mega rant - it's just really hard at the moment, my partner, family and friends (and my boss) are all great but I don't want to be a pain in the bum to them! 

Thanks again for your kind words


Louise


Dansky
Veteran Member


Date Joined Mar 2005
Total Posts : 2844
   Posted 4/28/2008 12:59 PM (GMT -6)   
Hi Louise and welcome to HealingWell, Blood tests alone won't confirm a diagnosis, you need to get a colonoscopy not a nice procedure but an essential procedure required to determine what's going on. Life with UC sure is a roller coaster, things will possibly get tough for you until you truly come to temds with this horrible disease, but the saying that time is a great healer is actually quite true, because with time you will learn to adapt which will make life that little bit easier. a positive diagnosis will allow you to move forward with your new way of life.

I fully understand what you are saying regarding the NHS, my biggest regret in life was not having private medical care when I was diagnosed with UC, which meant I had to wait 5 months before I got a colonoscopy, the NHS waiting lists are certainly frustrating to say the least.

Regarding the inconsiderate nurse, was that at your GP's? If so make a call to your practice manager if there is one and discuss your concerns regarding the way you were treated by the nurse, that was bang out of order.

Take care and don't worry about your post turning into a mega rant, that's one of the reasons this website was created for.

Dave
Dansky Co-moderator UC forum
 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!
Azathioprine, Beloc-Zok, Calcichew, Citalopram Hydrobromide, Dihydrocodeine, Mydocalm, Paracetamol, Pariet, Prednisolone, Sulfasalazine, Zopiclone.
 http://www.healingwell.com/donate/

 

 


Yorkshire Lass
New Member


Date Joined Apr 2008
Total Posts : 18
   Posted 4/28/2008 2:32 PM (GMT -6)   

Hi Dave

Thank you for your reply - I get the blood results on Friday and the GP is chasing up the referral for the colonoscopy so it's a waiting game for now.

This site is so helpful in learning about other people's experiences.  I will have a word about the nurse, the others at the GP's are so lovely, guess I was just unlucky and not in the best frame of mind!  Made it worse when I was so hacked off I went for a bacon butty which had devastating effects on the train on the way to work!!!  I'm finding that the best thing to do is to laugh about the whole thing as much as possible... yeah

Louise


Louise


Dansky
Veteran Member


Date Joined Mar 2005
Total Posts : 2844
   Posted 4/28/2008 4:20 PM (GMT -6)   
Louise,

I hope the c-scope goes well, if you haven't had one before, the preparation drink is awful, thankfully the procedure is no problem at all.

Dave
Dansky Co-moderator UC forum
 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!
Azathioprine, Beloc-Zok, Calcichew, Citalopram Hydrobromide, Dihydrocodeine, Mydocalm, Paracetamol, Pariet, Prednisolone, Sulfasalazine, Zopiclone.
 http://www.healingwell.com/donate/

 

 

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